Archived Clinical Research Datasets

Archived Clinical Research Datasets

The data from NINDS-supported clinical trials are an important scientific resource, made available to the wider scientific community, while ensuring that the confidentiality and privacy of study participants are protected.  NINDS requires all investigators seeking access to data from archived NINDS-supported trials to agree to certain terms and conditions. 

It is important to credit the researchers for their work. NINDS asks all data recipients to choose one of the two citation statements when publishing new analysis received datasets.

  1. This research is based on the National Institute of Neurologic Disease and Stroke’s Archived Clinical Research data (Full Title, PI, and grant number) received from the Archived Clinical Research Dataset web site.
  2. The (Full Title, PI, and grant number) data and analyses presented in this (manuscript/poster/publication) are based on the research files downloaded from the Archived Clinical Research web site of the National Institute of Neurologic Disease and Stroke.

Procedures for Requesting Archived Datasets

To request a dataset, please complete the NINDS Data Request Form (fillable PDF, 929 KB) and send it to the NINDS Clinical Research Liaison at CRLiaison@ninds.nih.gov.

Procedures for Submitting Datasets

If your study was funded by NINDS and you are ready to submit the results, please complete the Archiving Materials Form and Checklist (fillable PDF, 2.7 MB) and send it to the NINDS Clinical Research Liaison at CRLiaison@ninds.nih.gov

Archived datasets are available for the following studies:

Questions?

Please e-mail us at CRLiaison@ninds.nih.gov

Additional NIH/ NINDS data and biorepositories