Epilepsy research needs reach across the missions of multiple NIH Institutes and Centers and across many organizations outside the NIH. As the primary NIH Institute for epilepsy research, NINDS leads this working group, with broad representation from the NIH, other Federal agencies, and the research and patient advocacy communities. Annual meetings provide a forum for sharing information about ongoing and planned epilepsy research activities, highlighting advances and discussing needs and opportunities, and promoting increased collaboration toward common research goals.
ICARE Meetings
- May 26, 2022
- May 21, 2021
- April 26, 2019
- April 12, 2018
- April 14, 2016
- April 13, 2015
- March 24, 2014
- June 27, 2012
- June 27, 2011
- March 23, 2010
ICARE Member Organizations and Primary Representatives
National Institutes of Health (NIH)
National Institute of Neurological Disorders and Stroke (NINDS)
Walter Koroshetz, MD, ICARE Chair
Director
Miriam Leenders, PhD
Program Director, Channels, Synapses, and Neural Circuits Cluster
Vicky Whittemore, PhD
Program Director, Channels, Synapses, and Neural Circuits Cluster
National Institute on Aging (NIA)
Bradley C. Wise, PhD
Chief, Division of Neuroscience, Neurobiology of Aging Branch
National Institute on Alcohol Abuse and Alcoholism (NIAAA)
Qi-Ying Liu, MD, MSci
Program Director, Division of Neuroscience and Behavior
National Center for Advancing Translational Sciences (NCATS)
Philip J. (P.J.) Brooks, PhD
Acting Director, Division of Rare Diseases Research Innovation
National Institute of Child Health and Human Development (NICHD)
Melissa Parisi, PhD
Branch Chief, Intellectual and Developmental Disabilities Branch
Tracy King, MD
Medical Officer, Intellectual and Developmental Disabilities Branch
National Institute on Drug Abuse (NIDA)
Roger Sorensen, PhD, MPA
Branch Chief, Division of Neuroscience and Behavior, Integrative Neuroscience Branch
National Human Genome Research Institute (NHGRI)
Allison McCague
Science Policy Analyst, Policy and Program Analysis Branch
National Heart, Lung and Blood Institute (NHLBI)
Kristin Burns, MD
Medical Officer, Division of Cardiovascular Sciences
Olga Tjurmina, PhD
Program Director, Division of Cardiovascular Sciences
National Institute of Mental Health (NIMH)
Marjorie Garvey, MB, BCh
Program Officer, Division of Translational Research
National Institute of Nursing Research (NINR)
Rebecca Hawes, PhD
Chief (Acting), Data Analysis, Research, and Reporting Branch
Division of Science Policy and Public Liaison
Fogarty International Center (FIC)
UnJa Hayes, PhD
Program Officer, Division of International Training and Research
Other Federal Partners
Centers for Disease Control and Prevention (CDC)
Rosemarie Kobau, MPH, MAPP
Epilepsy Program Team Lead, CDC Epilepsy Program
National Center for Chronic Disease Prevention
and Health Promotion (NCCDPHP)
Niu Tian, MD, PhD
Medical Officer, National Center for Chronic Disease Prevention
and Health Promotion (NCCDPHP)
Department of Defense (DOD)
Melissa Miller, PhD
Program Manager, Epilepsy Research Program
Congressionally Directed Medical Research Programs
Food and Drug Administration (FDA)
Phil Sheridan, MD
Medical Officer, Division of Neurology
Products Center for Drug Evaluation and Research (CDER)
Health Resources and Services Administration (HRSA)
Donna Johnson, MHS
Public Health Analyst, Maternal and Child Health Bureau (MCHB)
Department of Veterans Affairs (VA)
Alan Towne, MD
Acting National Director, Epilepsy Centers of Excellence
Glenn Graham, MD
Deputy National Director, Neurology
Amanda Hunt, PhD
Program Manager, Office of Research and Development
Nongovernmental Organizations
American Epilepsy Society (AES)
Eileen Murray, MM, CAE
Executive Director
Manisha Patel, PhD
AES President
AES/NINDS Epilepsy Research Benchmarks Stewards
Eric Marsh, MD, PhD
Benchmark Stewards Committee Co-Chair
Lori Isom, PhD
Benchmark Stewards Committee Co-Chair
Citizens United for Research in Epilepsy (CURE)
Laura Lubbers, PhD
Chief Scientific Officer
Beth Lewin Dean, MPA, MBA
Chief Executive Officer
Susan Axelrod, MBA
Founding Chair
Dravet Syndrome Foundation
Mary Anne Meskis
Executive Director
Veronica Hood, PhD
Scientific Director
Epilepsy Foundation (EF)
Jackie French, MD
Chief Medical and Innovation Officer
Caitlin Grzeskowiak, PhD
Senior Director of Research & Innovation
Epilepsy Leadership Council (ELC)
Gabi Connecker, MPH
Chair of ELC
Anne Gramiak, MPH, MSLOC
Senior Manager, Epilepsy Leadership Council and Partner Program, AES
Epilepsy Study Consortium
Jackie French, MD
President and Director
Dennis Dlugos, MD, MSCE
Vice President
Patient Centered Outcomes Research Institute (PCORI)
Nora McGhee, PhD
Senior Program Officer, Clinical Effectiveness and Decision Science program
Jessica McCreary, MPH
Project Manager, Portfolio Data and Analytics
Pediatric Epilepsy Research Foundation (PERF)
Roy Elterman, MD
President
Deborah Hirtz, MD
Board Member
Tuberous Sclerosis Alliance (TS Alliance)
Kari Luther Rosbeck
President and Chief Executive Officer
Steve Roberds, PhD
Chief Scientific Officer