ICARE: Interagency Collaborative to Advance Research in Epilepsy

ICARE: Interagency Collaborative to Advance Research in Epilepsy

Epilepsy research needs reach across the missions of multiple NIH Institutes and Centers and across many organizations outside the NIH.  As the primary NIH Institute for epilepsy research, NINDS leads this working group, with broad representation from the NIH, other Federal agencies, and the research and patient advocacy communities. Annual meetings provide a forum for sharing information about ongoing and planned epilepsy research activities, highlighting advances and discussing needs and opportunities, and promoting increased collaboration toward common research goals.

04/26/2019

Agenda and Presentations

04/12/2018

Agenda and Presentations

04/14/2016

Summary

Agenda and Presentations

Member Update Reports [PDF, 869 kb]

04/13/2015

Summary

Agenda and Presentations

Member Update Reports [PDF, 1144 kb]

03/24/2014

Summary

Agenda and Presentations

Member Update Reports [PDF, 593 kb]

06/27/2012

Summary

Agenda and Presentations

06/27/2011

Agenda

Summary and Member Reports

03/23/2010

Agenda

Summary and Member Reports

National Institute of Neurological Disorders and Stroke (NINDS)

Walter Koroshetz, MD, ICARE Chair

Director

Miriam Leenders, PhD

Program Director

Channels, Synapses, and Neural Circuits Cluster

Vicky Whittemore, PhD

Program Director

Channels, Synapses, and Neural Circuits Cluster

National Institute on Aging (NIA)

Bradley C. Wise, PhD

Chief, Division of Neuroscience, Neurobiology of Aging Branch

National Institute on Alcohol Abuse and Alcoholism (NIAAA)

Qi-Ying Liu, MD, MSci

Program Director, Division of Neuroscience and Behavior

National Institute of Biomedical Imaging and Bioengineering (NIBIB)

Rishi Mathura, PhD

Scientific Program Specialist, Office of Program Evaluation and Strategic Partnerships

National Center for Advancing Translational Sciences (NCATS)

Anne R. Pariser, MD

Director, Office of Rare Diseases Research

National Institute of Child Health and Human Development (NICHD)

Melissa Parisi, PhD

Branch Chief, Intellectual and Developmental Disabilities Branch

Tracy King, MD

Medical Officer, Intellectual and Developmental Disabilities Branch

National Institute on Drug Abuse (NIDA)

Roger Sorensen, PhD, MPA

Branch Chief, Division of Neuroscience and Behavior, Integrative Neuroscience Branch

National Human Genome Research Institute (NHGRI)

Elena Ghanaim, MA

Policy Analyst, Policy and Program Analysis Branch

National Heart, Lung and Blood Institute (NHLBI)

Kristin Burns, MD

Medical Officer, Division of Cardiovascular Sciences

National Institute of Mental Health (NIMH)

Douglas L. Meinecke, PhD

Chief, Division of Translational Research, Molecular and Cellular Basis of Psychopathology Program

National Institute of Nursing Research (NINR)

Martha Matocha, PhD

Branch Chief, Division of Extramural Science Programs, Symptom Science and Genetics; Self-Management

Fogarty International Center (FIC)

Kathleen Michels, PhD

Program Director, Division of International Training and Research

Centers for Disease Control and Prevention (CDC)

Rosemarie Kobau, MPH, MAPP

Epilepsy Program Team Lead, CDC Epilepsy Program

National Center for Chronic Disease Prevention

and Health Promotion (NCCDPHP)

Niu Tian, MD, PhD

Medical Officer, National Center for Chronic Disease Prevention

and Health Promotion (NCCDPHP)

Department of Defense (DOD)

Anthony Pacifico, PhD

Congressionally Directed Medical Research Programs 

Epilepsy Research Program

Food and Drug Administration (FDA)

Phil Sheridan, MD

Medical Officer, Division of Neurology 

Products Center for Drug Evaluation and Research (CDER)

Health Resources and Services Administration (HRSA)

Yasmin Mazloomdoost, MPH, MSW

Public Health Analyst, Maternal and Child Health Bureau (MCHB)

Department of Veterans Affairs (VA)

Aatif Hussain, MD

Acting National Director, Epilepsy Centers of Excellence

Glenn Graham, MD

Deputy National Director, Neurology

American Epilepsy Society (AES)

Eileen Murray, MM, CAE 

Executive Director

AES/NINDS Epilepsy Research Benchmarks Stewards

Annapurna Poduri, MD 

AES/NINDS Benchmark Stewards Committee Chair

Citizens United for Research in Epilepsy (CURE)

Laura Lubbers, PhD

Chief Scientific Officer

Susan Axelrod, MBA

Founding Chair

Dravet Syndrome Foundation

Nicole Villas, MEd

President and Scientific Director

Mary Anne Meskis

Executive Director

Epilepsy Foundation (EF)

Phil Gattone, MEd

President and Chief Executive Officer

Brandy Fureman, PhD

Vice President of Research and New Therapies

Epilepsy Leadership Council (ELC)

Christi Heck, MD

Chair of ELC

Epilepsy Study Consortium 

Jackie French, MD

President and Director

Patient Centered Outcomes Research Institute (PCORI)

Kimberly Marschhauser, PhD

Program Officer, Research Infrastructure

Pediatric Epilepsy Research Foundation (PERF)

Roy Elterman, MD

President

Tuberous Sclerosis Alliance (TS Alliance)

Kari Luther Rosbeck

President and Chief Executive Officer

Steve Roberds, PhD

Chief Scientific Officer