The NINDS is deeply committed to the elimination of all health disparities and inequities in neurological conditions and care through the funding of innovative research, from basic science through implementation/dissemination, aimed at identifying, monitoring and targeting biologic, environmental, social, behavioral, and healthcare system factors related to race/ethnicity, socioeconomic status, geographic location, sex, sexual orientation, gender identity, educational attainment, age, and disability, that confer neurologic disease and its treatment disproportionately and adversely.
In 2010, the NINDS organized a workgroup of the National Advisory Neurological Disorders and Stroke (NANDS) Council to generate recommendations on how the institute should address disparities and inequities in neurological disorders (2011 Report of the NINDS Advisory Panel on Health Disparities Research(pdf, 196 KB)). This workgroup recommended that a transparent and systematic approach be developed to enumerate the issues and guide funding decisions. Based on these recommendations, the NINDS/Office of Global Health and Health Disparities (OGHHD) in the Division of Clinical Research (DCR) is leading a strategic planning process to guide NINDS’s research efforts in this space for the next 5-10 years. It is NINDS’s goal that this process be data-driven, standardized, and transparent, and will reflect a wide range of perspectives and stakeholders interested in the elimination of disparities and inequities in neurological care, outcomes, treatment, access and provision of services, and research.
Charge of the Committee:
This new NANDS Working Group will provide scientific guidance via NANDS Council to NINDS on how best to advance research on health disparities and health equity, with a focus on addressing biologic, socio-demographic, economic and other determinants of health.
Consistent with this charge, this NANDS-WG will:
I. Review and assist in the dissemination of the request for information (RFI). The purpose of the RFI is to obtain community/stakeholder input regarding areas of disparity/inequity in neurological disorders, care/services and opportunities for intervention, implementation, and dissemination research.
II. Review aggregate responses from the RFI, review NINDS portfolio and literature analyses, giving consideration to: (a) those conditions or groups of conditions with higher overall burden of disease, (b) areas with clear definable, evaluable, and treatable targets, (c) unique issues related to the nature of the neurological condition (e.g. stigma), and (d) social impact.
III. Determine gaps, omissions, and ways to optimize this HD strategic planning process.
IV. Summarize the “state-of-the science” and potential opportunities for disparities and inequities interventions, relevant to the research areas supported by NINDS, other NIH ICOs, and other collaborative federal/non-federal partners. Areas for consideration include basic and clinical research, health services, policy, epidemiological interventions, and implementation/dissemination strategies.
Process, Deliverables, and Timeframe
This working group of the NANDS Council will:
- Assist NINDS in seeking input broadly from stakeholders and other federal agencies on a 5-10 year strategic plan for HD research.
- Produce a research framework that delineates the spectrum of basic to applied research on the social and biological determinants of neurological health.
- Advise on and participate in the NINDS Health Disparities and Inequities in Neurological Disorders (HEADWAY) Workshop on September 22-24, 2021.
- Assist in documenting the strategic planning process.
- Present its final report of findings stemming from the above charge to the full NANDS Council.
Working Group Members
Alexandra M. Sims, M.D., M.P.H., FAAP.
University of Cincinnati Department of Pediatrics
Cincinnati Children's Hospital Medical Center
Amytis Towfighi, M.D.
Los Angeles County Department of Health Services>
Bernadette Boden-Albala, Dr.PH, M.P.H.
University of California, Irvine
Binny Chokshi, M.D.
Division of Adolescent and Young Adult Medicine
Children's National Hospital, Washington, D.C.
Bruce Ovbiagele, M.D., M.A.S.
University of California, San Francisco
Christin Veasley, B.Sc.
Chronic Pain Research Alliance
Daniel Lackland, DrPH.
Medical University of South Carolina
Darrell J. Gaskin, Ph.D., M.S.
Hopkins Center for Health Disparities Solutions
Johns Hopkins Bloomberg School of Public Health
David Brody, M.D., Ph.D.
Uniformed Services University of the Health Sciences
Edwin Trevathan, M.D, M.P.H.
Vanderbilt Institute for Global Health
Derek M. Griffith, Ph.D.
Geoffrey Ling, M.D., Ph.D.
On Demand Pharmaceuticals
Johns Hopkins University
Gerald Griffin, Ph.D.
Girardin Jean-Louis, Ph.D.
NYU Langone Health
Goldie Smith-Byrd, Ph.D.
Wake Forest School of Medicine
Jennifer J. Manly, Ph.D.
Karen C Johnston, M.D., M.Sc.
University of Virginia
Kofi Essel, M.D., M.P.H.
Children’s National and The George Washington University School of Medicine and Health Sciences (GWUSMHS)
Leslie Skolarus, M.D.
University of Michigan
Lilyana Amezcua, M.D., M.S.
University of Southern California (USC), Keck School of Medicine
Maria Glymour, ScD, M.S.
University of California, San Francisco
Nimish Mohile, M.D., M.S., FAAN
University of Rochester
Patrick A. Griffith, M.D., FAAN
Morehouse School of Medicine
Rachel P. Berger, M.D., M.P.H.
University of Pittsburgh, UPMC Children’s Hospital of Pittsburgh
Rachel Anne Whitmer, Ph.D.
University of California Davis
Salvador Cruz-Flores, M.D., M.P.H.
Texas Tech University Health Sciences Center
Sameer Seth, M.D., Ph.D.
Baylor College of Medicine
Spero M. Manson, Ph.D.
(Pembina Chippewa), Centers for American Indian and Alaska Native Health
American Stroke Association
American Heart Association (AHA)
Steven H. Woolf, M.D., M.P.H.
Virginia Commonwealth University
Susana Ramírez, Ph.D., M.P.H.
University of California, Merced
Virginia J. Howard, Ph.D., FAHA, FSCT
University of Alabama at Birmingham
Wally R. Smith, M.D.
Virginia Commonwealth University (VCU)