Nonprofit organization committed to educational and informational activities, programs and publications, and supporting non-partisan research and events to increase public awareness for Dandy-Walke
Patient Organizations
This listing is not intended to be a comprehensive listing of all not-for-profit health agencies in the United States, nor does inclusion of any particular organization imply endorsement by the National Institutes of Health or the Department of Health and Human Services. Our intent is to provide information useful to individuals nationally, and for this reason we have not included many local groups that offer valuable assistance to patients and their families within a limited geographic area. Many of the organizations listed in this directory have information available to the public on the World Wide Web.
Dedicated to helping people with Parkinson’s disease to live well today.
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Non-profit organization that works to promote and improve awareness, availability, and accessibility of information to help people with disabilities live, learn, work, and play independently.
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Works to better the lives of disabled veterans and their families by providing assistance in obtaining benefits and services earned through military service.
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Dedicated to aggressively raising research funds for Dravet syndrome, a rare and catastrophic form of epilepsy beginning in childhood, and related conditions.
Organization founded in 2012 by patients, caregivers, physicians and researchers dedicated to assisting people living with various forms of dysautonomia and increasing awareness of different medic
Nonprofit support and outreach network dedicated to serving youth diagnosed with various dysautonomia conditions.
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Non-profit medical research foundation that funds research, advances awareness, and provides education and support on dystonia, a movement disorder.