National nonprofit organization dedicated to accelerating efforts toward a cure for MS. Researchers have access to online resources and the ACP Repository of highly characterized biosamples.
Patient Organizations
This listing is not intended to be a comprehensive listing of all not-for-profit health agencies in the United States, nor does inclusion of any particular organization imply endorsement by the National Institutes of Health or the Department of Health and Human Services. Our intent is to provide information useful to individuals nationally, and for this reason we have not included many local groups that offer valuable assistance to patients and their families within a limited geographic area. Many of the organizations listed in this directory have information available to the public on the World Wide Web.
02451 MA
78270 TX
National non-profit that funds research and promotes public awareness of Pompe disease.
Suite 108
30041 GA
Suite 350
20852 MD
Provides information, guidance and training on the Americans with Disabilities Act (ADA), tailored to meet the needs of business, government and individuals at local, regional and national levels.<
60174 IL
Information gathering and sharing resource for professional and health care personnel and Aicardi syndrome families. Sponsors a biennial conference.
Suite 1100
20006 DC
Suite 600
22209 VA
Nonprofit voluntary health organization dedicated to the fight against amyotrophic lateral sclerosis.
Suite 340
19034-3214 PA
Suite 400
02139 MA
Susite 1900
48075 MI
Voluntary, non-profit foundation established to support children who are afflicted with AHC and their parents.