Non-profit, volunteer foundation that promotes research, education, and awareness of CJD and reaches out to people affected by CJD.
Patient Organizations
This listing is not intended to be a comprehensive listing of all not-for-profit health agencies in the United States, nor does inclusion of any particular organization imply endorsement by the National Institutes of Health or the Department of Health and Human Services. Our intent is to provide information useful to individuals nationally, and for this reason we have not included many local groups that offer valuable assistance to patients and their families within a limited geographic area. Many of the organizations listed in this directory have information available to the public on the World Wide Web.
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Cure CMD’s mission is to bring research, treatments and in the future, a cure for Congenital Muscular Dystrophies.
Cure Mito Foundation is a patient advocacy group led by the parents of families affected by Leigh Syndrome.
International non-profit foundation dedicated to accelerating the development of a treatment or cure for SMA through the funding of research, drug discovery programs, and clinical trials.
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The mission of CureCADASIL is to raise awareness of CADASIL, ensuring it will be universally recognized and understood by the medical community, enabling patients to be correctly diagnosed.
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CureDuchenne breaks the traditional charitable mold and balances passion with business acumen.
CurePSP is the leading source of information and support for patients and their families, other caregivers, researchers and healthcare professionals on prime of life neurodegenerat
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Provides information and support for Cushing's Disease and Cushing's Syndrome patients and their families and works to increase awareness and educate the public.
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International network for patients, family members, and professionals that offers support, networking, and education for patients, families, and professionals affected by CVS and abdominal migraine
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Supports brain research through grants, educates the public about the successes and potential of brain research, and produces free publications.