Non-profit organization dedicated to improving the quality of life for people with facial differences and their families.
Patient Organizations
This listing is not intended to be a comprehensive listing of all not-for-profit health agencies in the United States, nor does inclusion of any particular organization imply endorsement by the National Institutes of Health or the Department of Health and Human Services. Our intent is to provide information useful to individuals nationally, and for this reason we have not included many local groups that offer valuable assistance to patients and their families within a limited geographic area. Many of the organizations listed in this directory have information available to the public on the World Wide Web.
Tel:
CHASA is a 501(c)(3) nonprofit organization dedicated to improving the lives of children and families affected by pediatric stroke and other causes of hemiplegia.
Non-profit medical foundation dedicated to improving the health and well being of individuals and families affected by the neurofibromatoses.
The Reeve Foundation is dedicated to curing spinal cord injury by funding innovative research, and improving the quality of life for people living with paralysis through grants, information and adv
Non-profit grassroots organization formed by parents and families to raise funds for epilepsy research.
Tel:
Nonprofit organization that provides information about Charcot-Marie-Tooth Disease (CMT) and is driven to expedite drug delivery to the people who live around the world with CMT.
Non-profit organization founded by parents to investigate and raise awareness of the risks to infants and children of exposure to mercury from medical products, including thimerosal in vaccines.
A voluntary health organization that provides support for promising research into finding treatments or a cure for limb-girdle muscular dystrophy, type 2A/calpainopathy (LGMD2A).
Tel:
Clearinghouse for information on CLS. Provides a general forum for exchanging experiences, advice, and information with other CLS families.
Tel:
National, independent, nonprofit, self-help support organization offering friendship and understanding to families grieving the death of a child of any age, from any cause.