National injury prevention program dedicated to preventing brain, spinal cord, and other traumatic injuries through the education of individuals, community leaders, and creators of public policy.
Patient Organizations
This listing is not intended to be a comprehensive listing of all not-for-profit health agencies in the United States, nor does inclusion of any particular organization imply endorsement by the National Institutes of Health or the Department of Health and Human Services. Our intent is to provide information useful to individuals nationally, and for this reason we have not included many local groups that offer valuable assistance to patients and their families within a limited geographic area. Many of the organizations listed in this directory have information available to the public on the World Wide Web.
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National non-profit organization providing information on Temporomadibular Joint and Muscle Disorders (TMJDs), pain and/or dysfunction of the jaw joint affecting a person's ability to speak, eat, c
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Association dedicated to serving people with Tourette Syndrome and funding scientific research. TSA maintains chapters in each state and cooperates with contacts in 45 foreign countries.
National non-profit voluntary health organization dedicated to finding a cure for tuberous sclerosis while improving the lives of those affected.
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Non-profit organization devoted to providing information, support and leadership for families and those concerned with brachial plexus injuries and their prevention worldwide.
Educates, advocates and provides support services to ensure a life without limits for people with a spectrum of disabilities.
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Nonprofit voluntary health organization dedicated to providing patients and their families with information; assistance in identifying sources of medical care, social services, and genetic counseli
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Promotes research for cures and treatments of mitochondrial disorders and provides support for affected families.
The United Spinal Association is dedicated to improving the quality of life for hundreds of thousands of Americans living with the results of spinal cord injury and disease (SCI/D) and their famili
National disability rights organization dedicated to enhancing the lives of individuals with spinal cord injury or disease by ensuring quality healthcare, promoting research, advocating for civil righ