International non-profit organization established for support, referral, advocacy, and research into the management and cause of Sturge-Weber Syndrome (SWS).
Patient Organizations
This listing is not intended to be a comprehensive listing of all not-for-profit health agencies in the United States, nor does inclusion of any particular organization imply endorsement by the National Institutes of Health or the Department of Health and Human Services. Our intent is to provide information useful to individuals nationally, and for this reason we have not included many local groups that offer valuable assistance to patients and their families within a limited geographic area. Many of the organizations listed in this directory have information available to the public on the World Wide Web.
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National nonprofit advocacy organization committed to the search for effective treatments for ALS, through innovative collaborative research funding and the developmen
Promotes and protects the human rights of people with intellectual and developmental disabilities and actively supports their full inclusion and participation in the community throughout their life
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Raises awareness of and increases support to accelerate and fund research directed toward curing frontotemporal dementia (FTD).
Raises money for scientific research, education and public awareness of diet therapies for epilepsy.
Non-profit organization that focuses on critical issues specific to stroke in women, including research, prevention, treatment, education, and advocacy.
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The Lilly and Blair Foundation is dedicated to improving the lives of children with de novo spastic-paraplegia through collaboration with top scientists and funding of promising research.
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National support group that collects and disseminates information and promotes education and support for people affected by Shy-Drager Syndrome or multiple system atrophy.