The PMG Awareness Organization is a 501(c)3 nonprofit organization of families, caregivers, and medical professionals who care about those with Polymicrogyria. The organization is committed to bri
Patient Organizations
This listing is not intended to be a comprehensive listing of all not-for-profit health agencies in the United States, nor does inclusion of any particular organization imply endorsement by the National Institutes of Health or the Department of Health and Human Services. Our intent is to provide information useful to individuals nationally, and for this reason we have not included many local groups that offer valuable assistance to patients and their families within a limited geographic area. Many of the organizations listed in this directory have information available to the public on the World Wide Web.
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Works to enhance the lives and independence of polio survivors and ventilator users through education, advocacy, research, and networking programs.
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Serves as an international vehicle of communication about Prader-Willi syndrome (PWS), a genetically based developmental disability.
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Provides forums for basic brain tumor researchers in an effort to increase communication and collaboration among them.
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Not-for-profit organization that raises awareness and significant funds toward effective treatments and a cure for ALS, also known as Lou Gehrig’s disease.
Non-profit organization that offers information and resources about PTC to people with the disorder.
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National not-for-profit organization that promotes greater public and professional awareness of RSD, a painful neurological syndrome.
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Global network of people with disabilities, service providers, researchers, government agencies, and advocates promoting and implementing the rights, inclusion, and rehabilitation of people with di
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Research!America is the nation's largest 501(c)(3) public education and advocacy alliance working to make research to improve health a higher national priority.
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Resource for information, publications, and training programs that enable people with disabilities and chronic conditions to remain independent.