Works to increase awareness of and enrollment in patient assistance programs. Sponsors a toll-free helpline and serves as a single point of access to nearly 500 prescription assistance programs.
Patient Organizations
This listing is not intended to be a comprehensive listing of all not-for-profit health agencies in the United States, nor does inclusion of any particular organization imply endorsement by the National Institutes of Health or the Department of Health and Human Services. Our intent is to provide information useful to individuals nationally, and for this reason we have not included many local groups that offer valuable assistance to patients and their families within a limited geographic area. Many of the organizations listed in this directory have information available to the public on the World Wide Web.
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National non-profit organization trusted to assure the best for all babies' physical development by raising awareness about the gift of early detection, the promise of early therapy, and the benefi
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National non-profit organization that serves as an active liaison between the patient and their insurer, employer and/or creditors to resolve insurance, job retention and/or debt crisis matters relati
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Facilitates science for and educates parents of children with neurological conditions, as well as educating public officials on the critical importance of funding pediatric neurological research
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The world’s largest non-governmental funder of childhood brain tumor research. Also offers free educational information, Internet conferences, college scholarships, and other support.
Dedicated to helping the children and families who are affected by a pediatric neurotransmitter diseases through education, advocacy, and research.
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[In 2011 Susan and Scott Fahey announced that " PACE will close its doors."] The Nonprofit was established as a research resource providing information and support to families of children with epil
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International non-profit organization for patients with pituitary disorders, their families, loved ones, and the physicians and health care providers who treat them.
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Tax-exempt, nonprofit organization that serves families, researchers, and others affected by Pelizaeus-Merzbacher disease by supporting education, research, services, and advocacy programs.