August 2026 Advisory Council Meeting on Parkinson’s Research, Care, and Services

August 24, 2026 | 10:00 - 4:00 PM
ET

Virtual Event – Webcast live on HHS Live Streaming

Current Opportunity for Input
We are eager to hear from the community, and the following opportunity for public input is currently available:

Request for Information (RFI) - respond by August 22, 2026
The RFI is a one-time opportunity for broad input to inform development of the National Plan to End Parkinson’s. Learn more on the RFI webpage. 

Overview

This is the second meeting of the Advisory Council Meeting on Parkinson’s Research, Care, and Services (ACPRCS). The Council will continue its work to develop recommendations and priority actions for federal programs related to Parkinson’s disease and related disorders. The Council fosters collaboration across Federal partners, research leaders, clinicians, nonprofit stakeholders, and individuals living with Parkinson’s and their care partners as defined in National Plan to End Parkinson’s.

Meeting Purpose 

The meeting will feature:

  • Presentations from non-profit organizations focused on Parkinson’s and related disorders
  • An update on the federal inventory of Parkinson’s programs
  • Updates from the Research and Regulatory Program Subcommittee as well as the Care, Services, and Supports Subcommittee
  • Time for structured public comment
  • Discussion of next steps

All materials and discussion will support the development of the Council’s recommendations to the HHS Secretary and the National Plan to End Parkinson’s.

Public Comment Instructions

The ACPRCS welcomes input from people living with Parkinson's and Parkinsonisms, families, caregivers, advocates, scientists, clinicians, healthcare providers, advocacy organizations, scientific or professional organizations, and the broader community. Please adhere to the Public Comment Guidelines.

Public comment deadline

Public comments are accepted on an ongoing basis. To be shared with the Council at this meeting and to request an opportunity to provide your comments verbally, comments must be received by August 10, 2026, at 5:00 p.m. ET. 

Written Comments

Email: NationalPDplan@nih.gov

Please include the phrase “public comment” in both the subject line and the body of the message.

Verbal public comment time

Slots are limited; confirmations will be sent by email. For those interested in this opportunity, please indicate “Interested in providing oral/virtual comment” in your written submission, along with your name, email, and professional/organizational affiliation so that Council support staff can contact you if a slot is available.

Meeting Materials

Meeting materials will be posted here as they become available.

Before the Meeting:

After the Meeting:

  • Meeting Summary
  • Slide Presentations
  • Video Archive
  • Public Comments