Information and referral service that assists and promotes the development of quality respite and crisis care programs; helps families locate respite and crisis care services in their communities;
Patient Organizations
This listing is not intended to be a comprehensive listing of all not-for-profit health agencies in the United States, nor does inclusion of any particular organization imply endorsement by the National Institutes of Health or the Department of Health and Human Services. Our intent is to provide information useful to individuals nationally, and for this reason we have not included many local groups that offer valuable assistance to patients and their families within a limited geographic area. Many of the organizations listed in this directory have information available to the public on the World Wide Web.
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Non-profit organization solely combating VZV infections: chickenpox, shingles and post-herpetic neurgalia (PHN).
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National nonprofit organization that works to improve public health and safety by promoting public understanding of sleep and sleep disorders.
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Works to advance medical research into the causes of and treatments for spasmodic dysphonia; promotes physician and public awareness of the disorder; and sponsors support groups for patients and th
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Non-profit organization formed to give information and support to people with spasmodic torticollis (ST), also known as cervical dystonia.
The National Task Group on Intellectual Disabilities and Dementia Practices (the NTG) is a non-profit organization dedicated to representing the interests of adults with intellectual and developmen
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The National Tay-Sachs & Allied Diseases Association (NTSAD) leads the worldwide fight to treat and cure Tay-Sachs, Canavan, GM1, and Sandhoff diseases by driving research, forging
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Non-profit organization dedicated to the prevention of vaccine injuries and deaths through public education and advocacy programs.
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Non-profit organization created in 1994 to improve the lives of individuals affected by vulvodynia, a spectrum of chronic vulvar pain disorders.