Patient Organizations
This listing is not intended to be a comprehensive listing of all not-for-profit health agencies in the United States, nor does inclusion of any particular organization imply endorsement by the National Institutes of Health or the Department of Health and Human Services. Our intent is to provide information useful to individuals nationally, and for this reason we have not included many local groups that offer valuable assistance to patients and their families within a limited geographic area. Many of the organizations listed in this directory have information available to the public on the World Wide Web.
Non-profit public charity that works to inform families, medical professionals, and others about the dangers of meningococcal meningitis and the benefits of vaccination.
Dedicated to finding cures for mucopolysaccharidosis (MPS) and related diseases.
Funds research, helps families stay together, provides accurate and up-to-date information, helps with employment issues, offers free counseling, runs self-help groups, advocates for people with di
Provides tissue for AIDS-related research through a banking network of centers.
Federation of voluntary health organizations dedicated to helping people with rare "orphan" diseases and assisting the organizations that serve them.
Association of over 3,300 attorneys and paralegals who represent Social Security and Supplemental Security Income claimants.