FAST is committed to assisting individuals living with Angelman syndrome to realize their full potential and quality of life.
Patient Organizations
This listing is not intended to be a comprehensive listing of all not-for-profit health agencies in the United States, nor does inclusion of any particular organization imply endorsement by the National Institutes of Health or the Department of Health and Human Services. Our intent is to provide information useful to individuals nationally, and for this reason we have not included many local groups that offer valuable assistance to patients and their families within a limited geographic area. Many of the organizations listed in this directory have information available to the public on the World Wide Web.
Tel:
We are a voluntary, not-for-profit organization and programs like these can not succeed without your support.
April 30, 2012, FND Hope was created to unite people diagnosed with Functional Neurological Disorder [FND]/Conversion Disorder [CD].
Tel:
Works to discover the causes, treatments, preventions, and cures for a number of disorders involving retinal degeneration.
Tel:
A 501(c)(3) public foundation whose mission is to dramatically improve the lives of people living with peripheral neuropathy, to be the catalyst for advancing innovative therapeutic developments an
Tel:
Funds research, sponsors education and support programs on Fragile X syndrome, the most common inherited cause of mental retardation and developmental disabilities.
Tel:
National non-profit organization dedicated to the pursuit of educational, scientific and research activities leading to treatments for Friedreich's ataxia.
Non-profit support network that connects people with similar health problems and helps individuals cope with illness through the power of friendship.
Tel:
Gaucher Community Alliance (GCA) supports patients with Gaucher disease and their families through peer-to-peer support and education, advocacy, patient and family resources, and networking.
Tel:
Voluntary, nonprofit organization that provides support to patients with Guillain-Barré and their families, awards grants to researchers, and offers educational materials to the public and professi