December 08, 2023 | 11:00 - 3:00 PM
This event was part of the ME/CFS Research Roadmap Webinar Series, which took place between August 2023 and January 2024. The webinar focused on physiology and speakers, including researchers and people with lived experience, described current research, knowledge gaps, and future research opportunities for ME/CFS.
The webinar series is part of a larger effort led by NINDS to develop a Research Roadmap for ME/CFS, which will identify research priorities to move the field toward translational studies and clinical trials. Learn more about the roadmap process on the NANDS Council ME/CFS Research Roadmap Working Group page.
Agenda
| Time | Topic | Speakers/Moderators |
| 11:00 AM ET | Introduction | Vicky Whittemore, PhD NIH/NINDS |
| 11:05 AM ET | Illuminating Whole Body Immune Responses In ME/CFS Using PET | Michele James, PhD Stanford University |
| 11:30 AM ET | The Cell Danger Response | Robert Naviaux, MD, PhD University of California, San Diego |
| 11:55 AM ET | Update on the Itaconate Shunt Hypothesis | Rob Phair, PhD Integrative Informatics |
| 12:15 PM ET | Lived Experience: Searching for Mechanisms of ME/CFS in Other Conditions | Dominic Stanculescu Independent Researcher, Belgium |
| 12:35 PM ET | Consensus Report on What is Refreshing Sleep? | Rebecca Robbins, PhD Harvard Medical School |
| 12:50 PM ET | Non-refreshing Sleep | Maiken Nedergaard, MD, DMSc University of Rochester and University of Copenhagen |
| 1:15 PM ET | Break | |
| 1:30 PM ET | Metabolism and ME/CFS | Karl Tronstad, PhD University of Bergen |
| 1:55 PM ET | BH4: A Potential Culprit | Ron Davis, PhD Stanford University |
| 2:20 PM ET | Extracellular Vesicles | Ludovic Giloteaux, PhD Cornell University |
| 2:45 PM ET | Overall Discussion | |
| 3:00 PM ET | Adjourn |
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