ME/CFS Research Roadmap Webinar Series: Lesser Studied Pathologies

January 05, 2024 | 11:00 - 3:00 PM

This event was part of the ME/CFS Research Roadmap Webinar Series, which took place between August 2023 and January 2024. The webinar focused on less studied pathologies and speakers, including researchers and people with lived experience, described current research, knowledge gaps, and future research opportunities for ME/CFS.

The webinar series is part of a larger effort led by NINDS to develop a Research Roadmap for ME/CFS, which will identify research priorities to move the field toward translational studies and clinical trials. Learn more about the roadmap process on the NANDS Council ME/CFS Research Roadmap Working Group page.

Agenda

Time Topic Speakers/Moderators
11:00 AM ET Introduction and Welcome Vicky Whittemore, PhD
NIH/NINDS
Beth Pollack
MIT
11:05 AM ET

Lesser Studied Pathologies: Overview; Prevalence and Comorbidities Inclusion in Research

 Beth Pollack
MIT
11:15 AM ET Connective Tissue Disorders, Spinal Conditions, and ME/CFS Ilene Ruhoy, MD, PhD
Mount Sinai South Nassau
11:55 AM ET Break  
12:05 PM ET Tethered Cord Syndrome Petra Klinge, MD, PhD
Brown University
12:30 PM ET Mast Cell Activation Disorders and ME/CFS Anne Maitland, MD, PhD
Mount Sinai
12:55 PM ET Neurosurgical Conditions in ME/CFS Julie Rehmeyer
1:00 PM ET Break  
1:10 PM ET Gastrointestinal Dysfunction in ME/CFS: The Role of the Neuroimmune Axis Laura Pace, MD, PhD
University of Utah
1:40 PM ET ME/CFS and Female Reproductive Health Beth Pollack
MIT
1:45 PM ET ME/CFS and Neuroendocrinology Natalie Thomas, PhD
The University of Melbourne
1:55 PM ET Endometriosis and ME/CFS Emelia von Saltza
2:00 PM ET Reproductive Health in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Roumiana Boneva, MD, PhD
CDC
Elizabeth Unger, MD, PhD
CDC
2:20 PM ET Break  
2:25 PM ET Panel Discussion With All Speakers  
2:50 PM ET Closing Remarks Beth Pollack
MIT
Vicky Whittemore, PhD
NIH/NINDS
3:00 PM ET Adjourn  

Contact

NINDS ME/CFS Research Roadmap

Read Transcript(pdf, 518 KB)