This event was part of the ME/CFS Research Roadmap Webinar Series, which took place between August 2023 and January 2024. The webinar focused on less studied pathologies and speakers, including researchers and people with lived experience, described current research, knowledge gaps, and future research opportunities for ME/CFS.
The webinar series is part of a larger effort led by NINDS to develop a Research Roadmap for ME/CFS, which will identify research priorities to move the field toward translational studies and clinical trials. Learn more about the roadmap process on the NANDS Council ME/CFS Research Roadmap Working Group page.
Agenda
Time | Topic | Speakers/Moderators |
11:00 AM ET | Introduction and Welcome | Vicky Whittemore, PhD NIH/NINDS Beth Pollack MIT |
11:05 AM ET |
Lesser Studied Pathologies: Overview; Prevalence and Comorbidities Inclusion in Research |
Beth Pollack MIT |
11:15 AM ET | Connective Tissue Disorders, Spinal Conditions, and ME/CFS | Ilene Ruhoy, MD, PhD Mount Sinai South Nassau |
11:55 AM ET | Break | |
12:05 PM ET | Tethered Cord Syndrome | Petra Klinge, MD, PhD Brown University |
12:30 PM ET | Mast Cell Activation Disorders and ME/CFS | Anne Maitland, MD, PhD Mount Sinai |
12:55 PM ET | Neurosurgical Conditions in ME/CFS | Julie Rehmeyer |
1:00 PM ET | Break | |
1:10 PM ET | Gastrointestinal Dysfunction in ME/CFS: The Role of the Neuroimmune Axis | Laura Pace, MD, PhD University of Utah |
1:40 PM ET | ME/CFS and Female Reproductive Health | Beth Pollack MIT |
1:45 PM ET | ME/CFS and Neuroendocrinology | Natalie Thomas, PhD The University of Melbourne |
1:55 PM ET | Endometriosis and ME/CFS | Emelia von Saltza |
2:00 PM ET | Reproductive Health in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) | Roumiana Boneva, MD, PhD CDC Elizabeth Unger, MD, PhD CDC |
2:20 PM ET | Break | |
2:25 PM ET | Panel Discussion With All Speakers | |
2:50 PM ET | Closing Remarks | Beth Pollack MIT Vicky Whittemore, PhD NIH/NINDS |
3:00 PM ET | Adjourn |
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