ME/CFS Research Roadmap Webinar Series: Genomics/Genetic Susceptibilities

November 01, 2023 | 11:00 - 2:45 PM

This event was part of the ME/CFS Research Roadmap Webinar Series, which took place between August 2023 and January 2024. The webinar focused on genomics and genetic susceptibilities and speakers, including researchers and people with lived experience, described current research, knowledge gaps, and future research opportunities for ME/CFS.

The webinar series is part of a larger effort led by NINDS to develop a Research Roadmap for ME/CFS, which will identify research priorities to move the field toward translational studies and clinical trials. Learn more about the roadmap process on the NANDS Council ME/CFS Research Roadmap Working Group page.


Time Topic Speakers/Moderators
11:00 AM ET Opening Remarks Vicky Whittemore, PhD
11:05 AM ET   Oved Amitay, PhD
Solve M.E.
11:08 AM ET Lived Experience Perspective Hayla Sluss, PhD
University of Massachusetts
  Session 1:  Large Data-sets and Genome Wide Association Studies (GWAS)  
11:15 AM ET Genetic Risk Factors of ME/CFS: A Critical Review (GWAS) Chris Ponting, PhD
University of Edinburgh
11:45 AM ET Combinatorial Analysis of Genetic Risk Factors for ME/CFS, UK Biobank Stephen Gardner, PhD
12:10 PM ET Genetic Susceptibility in Long COVID and ME/CFS: Long COVID Host Genetics Initiative (international network) Hanna Ollila, PhD
University of Helsinki
Vilma Lammi, PhD
University of Helsinki
Anniina Maria Tervi, PhD
University of Helsinki
12:35 PM ET The Use of Large public Biobanks for Genotype/Phenotype Analysis: Industry Perspective Slavé Petrovski, PhD
12:55 PM ET Q&A Session  
1:05 PM ET Break  
  Session 2: Enriched Cohorts and Epigenetics   
1:25 PM ET Characterizing the Genetic Basis of ME/CFS Through Case-Control and Family Studies Fereshteh Jahaniani, PhD
Varuna Chander, PhD
1:50 PM ET Contribution of Epigenomics to ME/CFS Pathogenesis: Past, Present and Future Alain Moreau, PhD
Université de Montréal
2:20 PM ET Closing Remarks Kristina Allen-Brady, PhD
University of Utah
2:35 PM ET Adjourn  


NINDS ME/CFS Research Roadmap

Read Transcript(pdf, 428 KB)