ALS Strategic Planning Workshop

October 26, 2022 | 10:00 - October 27, 2022 | 5:00

The National Institute of Neurological Disorders and Stroke (NINDS) has initiated a strategic planning process to identify the highest priorities for research that will lead to the discovery of effective interventions for the diagnosis, treatment, management, prevention, or cure of ALS. A steering committee and topic-based working groups comprised of scientists, clinicians, advocates, people living with ALS, and their caregivers used information from a Request for Information(pdf, 180 KB), along with their own knowledge of the research landscape, to develop research priorities for:

  • Accelerating research on the biology behind ALS
  • Translating fundamental research into potential ALS therapies
  • Optimizing ALS clinical research
  • Optimizing the quality of life for persons living with ALS and their caregivers 
  • Identifying opportunities for collaborations and partnerships

View and/or download a DRAFT of the Strategic Plan(pdf, 1776 KB)

These working groups presented their findings at the workshop on October 26 and 27, 2022, which was free and open to the public and included opportunities for public input on the priorities.

Please visit the ALS Strategic Planning Workshop page to learn more about the event, or visit the ALS Strategic Plan page to learn more about the planning process or to provide comments on the updated DRAFT ALS Strategic Plan(pdf, 1776 KB).