Advisory Council on Parkinson’s Research, Care, and Services (ACPRCS)

June 29, 2026 | 10:00 - 4:00 PM
ET

Time-sensitive Request for Information (RFI)

Your voice can shape the future of Parkinson's disease and related disorders! A public request for information on Parkinson's research, care and services is open until August 22, 2026. Visit National Plan to End Parkinson's Request for Information (RFI) Strategy webpage to find out more. Submit your response using the National Plan to End Parkinson's RFI response form

Overview

The Advisory Council on Parkinson’s Research, Care, and Services (ACPRCS) is a Federal advisory committee charged with providing guidance to the U.S. Department of Health and Human Services (HHS) on issues related to Parkinson’s disease research, care, and services. Parkinson’s is defined broadly by establishing legislation and includes progressive supranuclear palsy, corticobasal degeneration, multiple system atrophy, Lewy body dementia and Parkinson’s disease-dementia. The Council plays an essential role in shaping the development of a coordinated National Plan to End Parkinson’s, ensuring that both Federal and public perspectives inform its priorities and execution.

The Council includes thirteen Federal members and ten non-Federal members, representing people living with Parkinson’s, caregivers, clinicians, researchers, and advocacy organizations. Non-Federal members were selected through an open nomination process conducted by HHS to ensure broad and inclusive representation.

ACPRCS Meetings

ACPRCS meetings are open to the public and will include updates, scientific and programmatic presentations, and opportunities for stakeholder engagement. A designated portion of each meeting will be reserved for public comment.

Following each meeting, materials, including minutes, video recordings, slides, and public comments will be posted on this webpage.

Inaugural Meeting Details

The Federal Register notice for the ACPRCS meeting is now posted

Virtual Event – Webcast live on HHS Live Streaming

Purpose of the Meeting

The inaugural meeting will:

  • Introduce the full slate of ACPRCS members
  • Provide an overview of Federal Parkinson’s research, care, and programmatic activities
  • Launch early strategic discussions on the Council’s initial workplan and priority areas

Public Comment Instructions

Members of the public are encouraged to submit written comments or to sign up for verbal public comment. Please adhere to the Public Comment Guidelines provided at National Plan to End Parkinson’s.

To submit a written public comment:

Email: NationalPDplan@nih.gov
Please include the phrase “public comment” in both the subject line and the body of the message.

To request verbal public comment time:

A limited number of slots are available for individuals to provide a ~3-minute oral summary or excerpt of their written comment to the Council during the meeting via videoconference. For those interested in that opportunity, please indicate “Interested in providing oral/virtual comment” in your written submission, along with your name, address, email, phone number, and professional/organizational affiliation so that Council support staff can contact you if a slot is available.

Meeting Materials

Meeting materials will be posted here as they become available.

Before the Meeting:

After the Meeting:

About the National Plan to End Parkinson’s

The ACPRCS is a core component of the National Plan to End Parkinson’s, established to coordinate Federal efforts, accelerate research, improve care, and enhance support for those living with Parkinson’s and their families.

Stay Connected

Check this page regularly for updates, announcements, and meeting resources.