In February 2023, the National Institute of Neurological Disorders and Stroke (NINDS), the lead institute for Amyotrophic Lateral Sclerosis (ALS) research within the National Institutes of Health (NIH), completed a strategic planning process to identify the highest priorities for research that will lead to the discovery of effective interventions for the diagnosis, treatment, management, prevention, or cure of ALS. Extensive feedback from a large and diverse group of contributors resulted in a comprehensive list of priorities for the ALS community.
NINDS and other organizations quickly moved into implementation efforts, creating programs to address many of the priorities outlined in the Strategic Priorities, such as a Public Private Partnership with the U.S. Food and Drug Administration and the Critical Path Institute. Additionally, many non-profit organizations have ongoing or new programs that address some of these ALS research priorities. After 9 months of implementation, we are hosting an update for the ALS community on our efforts related to implementing the Strategic Priorities.
Register here to join the conversation on November 6, 11am – 1pm ET (or access the recording after the meeting).