2019 NINDS Nonprofit Forum

May 21, 2019 - May 22, 2019
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The NIH National Institute of Neurological Disorders and Stroke (NINDS) invites members of nonprofit organizations to the Institute's 2019 Nonprofit Forum. The Progress through Partnership Forum provides an opportunity for nonprofit leaders to network with colleagues and to engage in discussions with NINDS staff.

The agenda featured panel discussions on cell and gene therapy, data collection and storage, motivating the next generation of researchers, neuroethics and success stories. The meeting will also offer participants a casual setting for a discussion with NINDS program directors. The Forum was held at the Neuroscience Center located at 6001 Executive Blvd. Bethesda, MD.

Agenda

NINDS Nonprofit Forum (Day 1) Videocast

Tuesday, May 21, 2019
TimeTitle
11:30 a.m.-12:30 p.m.Registration
12:30-1:30 p.m.Orientation
12:30-1:30 p.m.NINDS Director's Welcome
2:15-2:30 p.m.Break
2:30-3:15 p.m.Cell Therapy Panel Discussion
3:15-4:00 p.m.Gene Therapy and Gene Editing Panel Discussion
4:00-5:30 p.m.Poster Session & Reception

NINDS Nonprofit Forum (Day 2) Videocast

Wednesday, May 22, 2019
TimeTitle
8:30-9:00 a.m.Issues in Data Collection and Storage Presentation
9:00-9:45 a.m.Big Data: How to Address Custom Needs Panel Discussion
9:45-11:00 a.m.Meet the Program Directors/Division Directors
11:00 a.m.-12:30 p.m.Breakout Sessions
12:30-1:30 p.m.Lunch
1:30-2:00 p.m.Breakout Session Reports
2:00-2:45 p.m.Motivating the Next Generation of Researchers Panel Discussion
2:45-3:30 p.m.Neuroethics Panel Discussion
3:30-4:15 p.m.Featured Success Stories Panel Discussion
Related Topics and Tools
The NCATS Toolkit
A resource to provide patient groups with tools to advance medical research.
RaDaR - Rare Diseases Registry Program.
 
NIH 101
A videocast of the NINDS Nonprofit Forum, including an orientation session for new attendees (first session).
 
Grants Process Overview
NIH central resource for grants and funding information.
 
Stories about Science: Narratives for Nonprofits
Webinar on the importance of narrative in the nonprofit and research space.
 

Contact

Contact NINDS_nonprofit_forum@nih.gov with questions and discussion ideas.