Contact: Jessica Corley
Contact Number: (301) 496-5924
Contact Email: jessica.corley@nih.gov
Location:
Porter Neuroscience Building, NIH Main Campus
Bethesda, Maryland
United States
The NIH National Institute of Neurological Disorders and Stroke (NINDS) invites members of nonprofit organizations to the Institute's 2017 Nonprofit Forum. The Progress through Partnership Forum provides an opportunity for nonprofit leaders to network with colleagues and to engage in discussions with NINDS staff.
The agenda will feature panel discussions on research strategies, patient access to emerging therapies, clinical outcome measures, patient-centered research and success stories from patient organizations. The meeting will also offer participants a casual setting for a discussion with NINDS program directors.
View the registration site for speaker and attendee lists: https://meetings.ninds.nih.gov/?ID=16995.
Agenda
| Time | Title |
|---|---|
| 10:30-11:30 a.m. | Orientation for New Attendees |
| 11:30 a.m.-Noon | Registration |
| Noon-12:30 p.m. | NINDS Director's Welcome |
| 12:30-1:15 p.m. | Access to New Drugs for Rare Neurological Disorders |
| 1:15-2:00 p.m. | Maximizing Impact in a Tough Budget Era |
| 2:00-2:15 p.m. | Break |
| 2:15-2:45 p.m. | NCATS Toolkit Initiative |
| 2:45-3:45 p.m. | Lessons Learned: Creative solutions to sticky problems along the spectrum from discovery to preclinical to clinical research |
| 3:45-5:00 p.m. | Meet the Program Directors |
| 5:00-5:30 p.m. | Poster Session |
| 5:30-6:30 p.m. | NPO-Sponsored Reception |
| Time | Title |
|---|---|
| 8:30-10:00 a.m. | Concurrent Breakout Sessions (Select two from the list below.)
|
| 10:00-10:30 a.m. | Breakout Session Reports |
| 10:30-10:45 a.m. | Break |
| 10:45-11:45 a.m. | Functional Endpoints and Neurologic Scales: FDA guidance for clinical trials in neurology |
| 11:45 a.m.-12:15 p.m. | All of Us: Precision Medicine Initiative |
| 12:15-1:15 p.m. | Lunch |
| 1:15-2:15 p.m. | Patient-Driven Research |
| 2:15-3:30 p.m. | Featured Success Stories |
| 3:30-4:00 p.m. | Closing Remarks |