2017 NINDS Nonprofit Forum

September 05, 2017 | 10:30 - September 06, 2017 | 4:00
ET

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Progress through Partnership.  NINDS 2017 Nonprofit Forum

The NIH National Institute of Neurological Disorders and Stroke (NINDS) invites members of nonprofit organizations to the Institute's 2017 Nonprofit Forum. The Progress through Partnership Forum provides an opportunity for nonprofit leaders to network with colleagues and to engage in discussions with NINDS staff.

The agenda featured panel discussions on research strategies, patient access to emerging therapies, clinical outcome measures, patient-centered research and success stories from patient organizations. The meeting offered participants a casual setting for a discussion with NINDS program directors.

 

 

 

 

 

 

Agenda

Wednesday, September 6, 2017
TimeTitle
8:30-10:00 a.m.

Concurrent Breakout Sessions (Select two from the list below.)

  • Continuity of Care
  • Access to New Drugs for Rare Neurological Disorders
  • Maximizing Impact in a Tough Budget Era
  • Issues and Challenges in Functional Endpoints and Neurological Scales
10:00-10:30 a.m.Breakout Session Reports
10:30-10:45 a.m.Break
10:45-11:45 a.m.Functional Endpoints and Neurologic Scales: FDA guidance for clinical trials in neurology
11:45 a.m.-12:15 p.m.All of Us: Precision Medicine Initiative
12:15-1:15 p.m.Lunch
1:15-2:15 p.m.Patient-Driven Research
2:15-3:30 p.m.Featured Success Stories
3:30-4:00 p.m.Closing Remarks
Related Topics and Tools
The NCATS Toolkit
A resource to provide patient groups with tools to advance medical research.
RaDaR - Rare Diseases Registry Program.
 
NIH 101
A videocast of the NINDS Nonprofit Forum, including an orientation session for new attendees (first session).
 
Grants Process Overview
NIH central resource for grants and funding information.
 
Stories about Science: Narratives for Nonprofits
Webinar on the importance of narrative in the nonprofit and research space.
 

Contact

Contact NINDS_nonprofit_forum@nih.gov with questions and discussion ideas.