2017 NINDS Nonprofit Forum

September 05, 2017 | 10:30 - September 06, 2017 | 4:00

Contact: Jessica Corley
Contact Number: (301) 496-5924
Contact Email: jessica.corley@nih.gov

Porter Neuroscience Building, NIH Main Campus
Bethesda, Maryland
United States


Progress through Partnership.  NINDS 2017 Nonprofit Forum

The NIH National Institute of Neurological Disorders and Stroke (NINDS) invites members of nonprofit organizations to the Institute's 2017 Nonprofit Forum. The Progress through Partnership Forum provides an opportunity for nonprofit leaders to network with colleagues and to engage in discussions with NINDS staff.

The agenda will feature panel discussions on research strategies, patient access to emerging therapies, clinical outcome measures, patient-centered research and success stories from patient organizations. The meeting will also offer participants a casual setting for a discussion with NINDS program directors.

View the registration site for speaker and attendee lists: https://meetings.ninds.nih.gov/?ID=16995.





Tuesday, September 5, 2017
Time Title
10:30-11:30 a.m. Orientation for New Attendees
11:30 a.m.-Noon Registration
Noon-12:30 p.m. NINDS Director's Welcome
12:30-1:15 p.m. Access to New Drugs for Rare Neurological Disorders
1:15-2:00 p.m. Maximizing Impact in a Tough Budget Era 
2:00-2:15 p.m. Break
2:15-2:45 p.m. NCATS Toolkit Initiative
2:45-3:45 p.m. Lessons Learned: Creative solutions to sticky problems along the spectrum from discovery to preclinical to clinical research    
3:45-5:00 p.m.   Meet the Program Directors
5:00-5:30 p.m.  Poster Session
5:30-6:30 p.m.  NPO-Sponsored Reception


Wednesday, September 6, 2017
Time Title
8:30-10:00 a.m. Concurrent Breakout Sessions (Select two from the list below.)
  • Continuity of Care
  • Access to New Drugs for Rare Neurological Disorders
  • Maximizing Impact in a Tough Budget Era
  • Issues and Challenges in Functional Endpoints and Neurological Scales
10:00-10:30 a.m. Breakout Session Reports
10:30-10:45 a.m. Break
10:45-11:45 a.m. Functional Endpoints and Neurologic Scales: FDA guidance for clinical trials in neurology
11:45 a.m.-12:15 p.m. All of Us: Precision Medicine Initiative
12:15-1:15 p.m. Lunch
1:15-2:15 p.m. Patient-Driven Research
2:15-3:30 p.m. Featured Success Stories
3:30-4:00 p.m. Closing Remarks