The NIH National Institute of Neurological Disorders and Stroke (NINDS) invites members of nonprofit organizations to the Institute's 2016 Nonprofit Forum. The Progress through Partnership Forum provides an opportunity for nonprofit leaders to network with colleagues and to engage in discussions with NINDS staff.
The agenda featured panel discussions on research strategies, patient access to emerging therapies, clinical outcome measures, patient-centered research and success stories from patient organizations. The offers participants a casual setting for a discussion with NINDS program directors.
The meeting was held at:
Porter Neuroscience Building, NIH Main Campus
Bethesda, Maryland
Agenda
NINDS 2016 Nonprofit Forum (Day 1)
| Time | Title |
|---|---|
| 9:30-10:00 a.m. | Registration |
| 10:00-10:30 a.m. | NINDS Director's Welcome |
| 10:30-11:15 a.m. | Lessons Learned and Case Studies in Natural History Databases |
| 11:15-11:30 a.m. | Break |
| 11:30 a.m.- 12:15 p.m. | Data Integration and Data Management (Challenges and Opportunities): Lessons Learned in Data Sharing from Repositories |
| 12:15-1:00 p.m. | Strategies for Biomarker Identification |
| 1:00-1:45 p.m. | Lunch |
| 1:45-2:30 p.m. | NIH 101: Priority Setting, Decision-Making, NIH Basics and Discussion |
| 2:30-3:30 p.m. | Developing Better Clinical Outcome Measures: Integrating Patient-Reported Outcomes, Wearable Technologies, and FDA Needs into Clinical Data Collection |
| 3:30-5:00 p.m. | Meet the Program Directors |
| 5:00-6:00 p.m. | NPO-sponsored Reception |
NINDS 2016 Nonprofit Forum (Day 2)
| Time | Title |
|---|---|
| 8:30-10:30 a.m. | Concurrent Breakout Sessions (Select two from the list below.)
|
| 10:30-10:45 a.m. | Break |
| 10:45-11:30 a.m. | Breakout Session Reports |
| 11:30 a.m.-12:30 p.m. | Poster Session |
| 12:30-1:30 p.m. | Lunch |
| 1:30-2:30 p.m. | Cultivating Collaborations on a Shoestring and Investing in the Intellectual Pipeline: Building a Multi-Stakeholder Network from Ground Zero & Best Practices for Finding, Funding and Retaining Researchers |
| 2:30-3:30 p.m. | Featured Success Stories: Lessons Learned from Leveraging Resources, Network Building, and Strategic Planning into Successful Business Models |