Director's Messages

The annual NINDS Nonprofit Forum, taking place July 24-25, 2023, brings together organizations that represent the many neurological diseases within the NINDS portfolio. It’s a valuable venue for the organizations to collaborate and share lessons learned among themselves; and for NINDS to understand how we can most effectively work with organizations to address research needs and challenges.
From May 31-June 1, 2023, the National Advisory Neurological Disorders and Stroke (NANDS) Council met virtually and in-person in Bethesda, Maryland. NINDS Council members include many talented extramural science and health experts, who contribute technical expertise and an understanding of the needs of the research communities of academia and industry.
On June 12-13, 2023, NIH will host the 9th Annual Brain Research Through Advancing Innovative Neurotechnologies® (BRAIN) Initiative Meeting.
For over a decade, NINDS has worked to bring increased attention to the importance of scientific rigor and transparency. Now, I am delighted to share that NINDS is launching two new initiatives to further engage the research community in this work.
May is National Stroke Awareness Month, a time to raise awareness about the symptoms and risk factors of stroke. The latter is so important as most strokes are thought to be preventable with lifelong control of risk factors, especially high blood pressure.
April is Parkinson’s Disease Awareness Month, chosen because it is the birth month of James Parkinson, who first identified the symptoms of Parkinson’s disease more than 200 years ago. Since then, we have made considerable progress towards understanding what causes the motor symptoms we most associate with Parkinson’s disease (PD).
At NINDS, we are committed to supporting researchers across career stages whose work advances our mission to further our understanding of the brain and nervous system and to use that knowledge to reduce suffering due to neurological disorders. An important part of this support lies in providing accessible and up-to-date web information about how we fund research.
Although SARS-CoV-2, the virus that causes COVID-19, was initially identified as a respiratory virus, its effects on the nervous system have been profound.
For over ten years, NINDS has participated in Brain Awareness Week, taking place in 2023 from March 13 – 19, as a weeklong celebration of both the complexity and mystery of the brain. At NINDS, we strive to gain a deeper understanding of the brain and nervous system to develop effective therapies for all people with neurological disorders and stroke.
Rare and ultra-rare diseases affect millions of people worldwide. Today, roughly 10,000 known rare and ultra-rare diseases affect more than 30 million Americans and their families. The incidence of each disease may be rare, but collectively, rare diseases represent a unique public health challenge. Further, rare diseases disproportionately affect the nervous system, and almost 90% of rare disorders can occur in children. For years, the NIH and NINDS have supported important research efforts and partnerships that aim to better understand, diagnose, and treat rare diseases.
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