Alzheimer's Disease-Related Dementias Summit 2019

Alzheimer's Disease-Related Dementias Summit 2019

March 14, 2019
March 15, 2019

Contact: 

Roderick A. Corriveau, Ph.D.

Contact Email: 

roderick.corriveau@nih.gov

Location: 

Natcher Auditorium Bethesda, Maryland United States

Event Description: 

Sponsored by:

National Institute of Neurological Disorders and Stroke

Précis:

The ADRD Summit 2019 will address special research priorities for Alzheimer's disease-related dementias, including frontotemporal (FTD), Lewy body (LBD), mixed, and vascular dementias. Organized by the NINDS, the summit is part of the National Plan To Address Alzheimer's Disease: 2017 Update, and is complementary to NIA Alzheimer's Disease Research Summit 2018 and the DHHS National Research Summit on Care, Services and Supports for Persons With Dementia and Their Caregivers.

The goal of the 2019 Summit is to review and assess the progress on the research recommendations developed by the 2013 and 2016 ADRD Summits, refine and add new recommendations based on recent scientific discoveries, solicit input from diverse stakeholders, including the public, and update priorities and timelines for addressing the Alzheimer’s disease-related dementias.

Post Event Summary: 

Purpose:

To solicit input from diverse stakeholders to add to, revise and refine Alzheimer’s disease-related dementias (ADRD) recommendations that become research milestones in the National Plan.

Background:

The ADRD Summits complement the Alzheimer’s Disease Research Summits, and the National Research Summits on Care, Services, and Supports. These summits are coordinated planning efforts that respond to the National Plan to Address Alzheimer’s Disease, first released in 2012 and now updated annually. The conferences set national research recommendations that reflect critical scientific priorities for research on AD and ADRD (AD/ADRD)

Summary of meeting discussion:

The ADRD Summit 2019 addressed research priorities for Alzheimer's disease-related dementias, including frontotemporal, Lewy body, mixed, and vascular dementias along with broader cross-cutting areas such as dementia nomenclature and AD/ADRD health disparities. Additionally, there was a session focused on the emerging scientific topics of TDP-43 pathology in common dementias and traumatic brain injury as a risk factor for AD/ADRD.  Significant portions of the Summit were set aside for public comment on the research recommendations.  The Summit concluded with a review of the highlights from the sessions and summary of the major themes from the public comments. Directly after the summit proceedings, NINDS led a closed executive session during which session chairs, NIH, other federal officials, Steering Committee members, and the Scientific Chair incorporated feedback from the summit, edited the draft recommendations and laid out the next steps toward the recommendations becoming research milestones in the National Plan to Address Alzheimer’s Disease.

Conclusions (may include outcomes, next steps, etc.):

A formal report of the research recommendations developed as part of the Summit will be presented to the National Advisory Neurological Disorders and Stroke Council. The report, if approved by the NINDS Council, will be delivered to the Department of Health and Human Services (DHHS) National Alzheimer’s Project Act (NAPA) Council. The NAPA Council will then consider including the ADRD Summit 2019 recommendations in the next annual update of the National Plan, thus refining, revising, and adding to the previously included ADRD 2013 recommendations. The research recommendations will help guide NIH investments in ADRD research and inform future AD/ADRD Bypass Budgets, the annual professional judgment budget that NIH prepares and submits to the President for review and transmittal to Congress each year.

2019 ADRD Scholars (pdf, 277 kb)

Draft Recommendations (pdf, 1 mb)