Because of a lapse in government funding, the information on this website may not be up to date, transactions submitted via the website may not be processed, and the agency may not be able to respond to inquiries until appropriations are enacted.
The NIH Clinical Center (the research hospital of NIH) is open. For more details about its operating status, please visit cc.nih.gov.
Updates regarding government operating status and resumption of normal operations can be found at opm.gov.
Ante la falta de fondos del gobierno federal, no se actualizará este sitio web y la organización no responderá a transacciones ni consultas hasta que se aprueben los fondos.
El Centro Clínico de los Institutos Nacionales de la Salud (el hospital de investigación) permanecerá abierto. Consulte cc.nih.gov (en inglés).
Infórmese sobre el funcionamiento del gobierno federal y el reinicio de las actividades en opm.gov.
In January of 2022, the National Institute of Neurological Disorders and Stroke (NINDS), part of the National Institutes of Health (NIH), initiated a strategic planning process to identify the highest priorities for research that will lead to the discovery of effective interventions for the diagnosis, treatment, management, prevention, or cure of ALS. The strategic planning process began with a public Request for Information (RFI) that was open until February 11, 2022. RFI responses were shared with a working group of the National Advisory Neurological Disorders and Stroke (NANDS) Council, which included scientists, clinicians, advocates, people living with ALS, caregivers, and people with genetic risk of developing ALS. The NANDS Council Working Group used this information, along with their own knowledge of the research landscape, to develop research priorities in five areas:
These working groups presented their finding at a public workshop on October 26 and 27, 2022, which was free and open to anyone interested in ALS research priorities and included opportunities for attendees to provide input on the priorities. After the meeting, the NANDS Council Working Group modified the research priorities to take into account the workshop discussions. NINDS is currently seeking public comment on the Draft ALS Strategic Plan before it is presented to NANDS Council for approval on February 1-2, 2022.
Information requested The NINDS is soliciting feedback on the Draft ALS Strategic Plan (pdf, 1776 KB).
The NINDS seeks comments on any or all of the priorities across the five key areas articulated in the Draft ALS Strategic Plan (pdf, 1776 KB), including potential benefits, drawbacks or challenges, other priority areas for consideration, or any other comments.
NINDS encourages organizations (e.g., patient advocacy groups, professional organizations) to submit a single response reflective of the views of the organization or membership as a whole.