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… On this page What is cerebro-oculo-facio-skeletal (COFS) syndrome? Cerebro-oculo-facio-skeletal (COFS) syndrome—also known as COFS syndrome and Pena-Shokeir syndrome, Type II—is an inherited, …
… biospecimens should submit their application through the NINDS biosample online submission webform, which also … clinical trial evaluating coenzyme Q 10 for the treatment of Huntington’s Disease Spinocerebellar Ataxia READISCA : a … (NAF) for patients with a confirmed diagnosis of SCA 1, 2, 3, 6, 7, 8, or 10. Note: While participants enrolled in …
Patient Organizations
… On this page What is neurosyphilis? Neurosyphilis is a rare bacterial infection of the brain or spinal cord. Neurosyphilis is different from … someone has. Neurosyphilis is rare today because there are effective treatments for syphilis. Syphilis is a …
… On this page What is hydrocephalus? Hydrocephalus is an abnormal buildup of cerebrospinal fluid (CSF) deep within the brain. This excess fluid causes the ventricles (cavities) … compensate and the fluid pressure inside the head does not increase. NPH can happen in people of any age, but …
Monday, July 15, 2024
We invite you to register and join us at the 2024 NINDS Nonprofit Forum on July 23-24 via Zoom or in-person in Rockville, MD. Attracting 150-200 attendees from over 100 organizations, the annual NINDS Nonprofit Forum brings together the…
… 60 years or older, however, an estimated 5 to 10 percent of people with PD are diagnosed before the age of 50. … disease affects thousands more wives, husbands, children, and other caregivers. In the United States alone, the cost of … normal and abnormal functions of alpha-synuclein and its relationship to genetic mutations that impact PD. Genetic …
… and career development awards assigned to the NINDS , as well as for other requests for support for which Council … and career development awards assigned to the NINDS, as well as for other requests for support for which Council …
… (DTR) is to accelerate basic research findings towards patient use for neurological disorders and stroke by providing funding, expertise, and … Grantees have had for research on brain and nervous system disorders. Image Are you new to Translational Research? …
… blood pressure during delivery Issues with the umbilical cord, uterus, or placenta Maternal infections or infections … Diagnosing HIE Diagnostic tests such as blood tests, spinal fluid tests, imaging tests (MRIs, ultrasounds), … trials are studies that allow us to learn more about disorders and improve care. They can help connect patients …