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… rapidly progressing brain disorder. It belongs to a family of diseases known as prion diseases, also known as … spongiform encephalopathies (TSEs) . Spongiform refers to the way affected brains look. With prion diseases, the brain … prions can clump together and build up in brain tissue, which may lead to the nerve cell loss and other brain damage …
… of the Federal government. The government may withhold information pursuant to the nine exemptions and three … ). For more details about the types of information you can request through FOIA, or to submit a FOIA … with NIH, visit the National Institutes of Health FOIA Page . … …
… (break down) lipids or because they make enzymes that do not work properly. Over time, storing too many lipids … Type A, children with Type B live longer, but they may need to use oxygen over time due to lung problems. Type C … treatment options. Search Clinical Trials How can I or my loved one help improve care for people with lipid …
… lipofuscinoses (NCLs), also known as Batten disease, is the name for a group of rare inherited neurodegenerative … to help retain functioning for as long as possible. What are the latest updates on Batten disease? NINDS is a …
… talking, walking, and socializing — that most of us take for granted. FTD and other frontotemporal disorders are a … also used to be referred to as Pick’s disease, and some doctors still use the term today. It's important to note that … environment to reduce confusion and improve the person’s sleep. If compulsive eating is an issue, consider supervising …
… As the primary NIH Institute supporting research on Parkinson’s disease (PD), NINDS periodically coordinates comprehensive …
… Friday, February 28, 2020 Rare diseases often don’t have the same name recognition that other neurological disorders … disorder. This exciting case illustrates that the time is ripe for our planned network to harness and coordinate the …
… ataxias? Spinocerebellar ataxias (SCA) refer to a group of rare, genetic neurological disorders that cause loss of muscle control, coordination, and balance. The SCAs involve loss of structure and function (degeneration) of the cells of the hindbrain, which includes the cerebellum (the part that helps control …
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Alzheimer's Disease and Alzheimer's-Related Dementias
NINDS-led programs that advance Alzheimer’s Disease and Alzheimer’s Disease-Related Dementias (AD/ADRD) research, as part of the National Plan to Address Alzheimer's Disease.…
… Requests are reviewed by the Repeat Expansion Disorders Resource Access Committee (RED-BRAC) , an external …