Virtual | 1- 5pm EDT
NINDS is a member of the Muscular Dystrophy Coordinating Committee (MDCC), a Federal Advisory Committee including NIH institutes, other Federal agencies, and patient advocates. The MDCC identifies the many challenges confronting people with muscular dystrophy and their families and coordinates efforts to address them.
Agenda
| Time | Presentation |
|---|---|
| 1:00–1:10 |
Introductions and Meeting information Glen Nuckolls, National Institute of Neurological Disorders and Stroke (NINDS/NIH), MDCC Designated Federal Official (DFO) |
| 1:10–1:40 |
Chair Presentation Diana Bianchi, Director, Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD/NIH), MDCC Chair |
| 1:40-1:50 |
Seeking input on the Fiscal Years 2025-2029 NIAMS Strategic Plan Lindsey Criswell, Director, National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS/NIH) |
| 1:50-2:30 |
Meeting Reports Cure CMD 2022 Scientific and Family Conference Cardiac in Duchenne: Where we are and where we are going? |
| 2:30-2:45 | Break |
| 2:45-4:30 |
Innovative Outcome Measures for the Muscular Dystrophies Session Introduction Lived Experience Using Computer Vision to Quantify Movement Quantitative Video Assessment in Neuromuscular Conditions AI-enabled Shoe Insoles to Assess Walking Function in SMA and DMD |
| 4:30-4:40 | Update on Respiratory Complications of the Muscular Dystrophies, NOT-HL-22-025 Aruna Natarajan, National Heart, Lung and Blood Institute (NHLBI/NIH) |
| 4:40-4:50 | Update on Wellstone Muscular Dystrophy Research Centers Program, RFA-AR-23-001 Emily Carifi, NIAMS/NIH |
| 4:50 | Closing Remarks Diana Bianchi, NICHD/NIH |
| 5:00 | Adjourn |