Virtual Only | Webcast Live
NINDS is a member of the Muscular Dystrophy Coordinating Committee (MDCC), a Federal Advisory Committee including NIH institutes, other Federal agencies, and patient advocates. The MDCC identifies the many challenges confronting people with muscular dystrophy and their families and coordinates efforts to address them.
Agenda
Time | Presentation |
---|---|
12:00 PM – 12:15 PM |
Introductions and Meeting Information |
12:15 PM – 12:35 PM |
Chair Presentation |
12:35 PM – 12:50 PM |
Group Discussion |
12:50 PM – 1:05 PM |
New member nominee presentation |
1:05 PM – 1:30 PM |
Meeting/Conference Reports EveryLife Foundation – Rare Disease Week, Feb 25-March 1, 2024 |
1:30 PM – 1:50 PM | Rare Diseases: Considerations for the Development of Drugs and Biological Products Guidance for Industry Cynthia Welch, Office of New Drugs, Center for Drug Evaluation and Research (CDER), U.S. Food & Drug Administration |
1:50 PM – 2:00 PM | Break |
2:00 PM – 3:50 PM |
Exercise in Muscular Dystrophies: Current Understanding and Future Directions “Gaps: Maximizing Health Potential Through Exercise Impact on Neuromuscular Disorders and Clinical Trials”
“The Molecular Transducers of Physical Activity Consortium (MoTrPAC)”
|
3:50 PM – 4:00 PM |
Closing remarks |
4:00 PM | Adjourn |