AMP ALS PWLE Forum: ALL ALS Update

As part of the Accelerating Medicines Partnership for ALS (AMP® ALS), the National Institute of Neurological Disorders and Stroke (NINDS) will reconvene the People with Lived Experience (PWLE) of ALS Forum to solicit feedback on current ALS research efforts. The PWLE Forum is a venue where investigators can learn from the expertise of PWLE and incorporate their input in the design, execution, and decision-making of studies. During this virtual PWLE Forum meeting, we were joined by Dr. Bob Bowser, Chief Scientific Officer at Barrow Neurological Institute, and one of the contact PIs from the Access for All in ALS (ALL ALS) Clinical Research Consortium. Dr. Bowser provided an update of the ALL ALS Natural History Study year 1 and 2 milestones, vendors, outreach and enrollment efforts, and site activations.