AMP ALS PWLE Forum- ALL ALS Protocol Update and Outreach Efforts

As part of the Accelerating Medicines Partnership for ALS (AMP® ALS), NINDS convenes the People with Lived Experience (PWLE) of ALS Forum to solicit feedback on current ALS research efforts. The PWLE Forum is a venue where investigators can learn from the expertise of PWLE and incorporate their input in the design, execution, and decision-making of studies. During this month's PWLE Forum meeting, Dr. James Berry, Dr. Bob Bowser, and Dr. Jinsy Andrews, principal investigators in the Access for All in ALS (ALL ALS) Clinical Research Consortium, presented an update of the Natural History Study protocol and community outreach efforts to enhance recruitment and enrollment in the study.