2020 NINDS Nonprofit Forum

June 29, 2020 - June 30, 2020

Contact: Jessica Corley
Contact Email: jessica.corley@nih.gov

Watch Videocasts:

Day 1
Day 2

2020 Nonprofit Forum Evaluation Survey



Nonprofit Forum banner

The National Institute of Neurological Disorders and Stroke (NINDS) invites members of nonprofit organizations to an annual Nonprofit Forum. The Progress through Partnership Forum provides an opportunity for nonprofit leaders to network with colleagues and to engage in discussions with NINDS staff.

Additionally, please join us at an associated free webinar on the importance of narrative in the nonprofit and research space: Thursday, July 16th from 3:00-4:00 pm ET.

The 2020 Forum included a session on June 29th, COVID Challenges in Nonprofit and Research Communities. The session moderators wanted to ensure the session was both relevant and effective for the community. The moderators tailored the session based on preliminary responses to this survey, and we welcome interested parties to continue to provide their input.


Monday, June 29th

Time Agenda Item
10:30 a.m. - 10:45 a.m. NINDS Director’s Welcome
10:45 a.m. - 11:30 a.m. Keynote: How Cure SMA has Made Progress by Building Community and Collaborations
11:30 a.m.- 12:15 p.m. COVID Challenges in Nonprofit and Research Communities
12:15 p.m. - 12:45 p.m. Break
12:45 p.m. - 1:45 p.m. Challenges in Therapeutic Development
1:45 p.m. - 2:45 p.m. Meet the Program Directors Part : Breakouts by Division of Neuroscience with Divisions of Translational and Clinical Research participation
2:45 p.m. - 3:00 p.m. Break
3:00 p.m. - 4:00 p.m. Clinical Trials: Precision Approaches to Rare and Not So Rare Disorders

Tuesday, June 30th

Time Agenda Item
10:30 a.m. - 11:00 a.m. 2021-2026 NINDS Strategic Plan
11:00 a.m. - 12:00 p.m. Meet the Program Directors Part 2: Breakouts by Divisions of Translational Research and Clinical Research with Division of Neuroscience participation


2020 Nonprofit Forum Executive Committee Members
Member Organization
Adam Hartman NINDS
Amy Adams NINDS
Chris Boshoff NINDS
Cynthia Oviatt Ataxia-Telangiectasia Children’s Project
Geraldine Bliss CureSHANK
Janet Hieshetter Dystonia Medical Research Foundation
Jill Morris NINDS
Lyn Jakeman NINDS
Margo Warren NINDS
Michael Oshinsky NINDS
Monica Weldon Bridge the Gap – SYNGAP Education and Research Foundation
Nina Schor NINDS
Paul Gross Hydrocephalus Association
Ronald Bartek The Friedreich’s Ataxia Research Alliance
Susan Dickinson The Association for Frontotemporal Degeneration
Walter Koroshetz NINDS


Related Resources

Speaker List(pdf, 200 KB)

Watch videocasts:

Day 1
Day 2