The National Institute of Neurological Disorders and Stroke (NINDS) invites members of nonprofit organizations to an annual Nonprofit Forum. The Progress through Partnership Forum provides an opportunity for nonprofit leaders to network with colleagues and to engage in discussions with NINDS staff.
An associated free webinar on the importance of narrative in the nonprofit and research space was held on Thursday, July 16th from 3:00 p.m. - 4:00 p.m. ET.
The 2020 Forum included a session on June 29th, COVID Challenges in Nonprofit and Research Communities. The session moderators wanted to ensure the session was both relevant and effective for the community. The moderators tailored the session based on preliminary responses to an evaluation survey, and we welcomed interested parties to continue to provide their input.
Agenda
Watch Videocast: Day 1
| Time | Agenda Item |
|---|---|
| 10:30 a.m. - 10:45 a.m. | NINDS Director’s Welcome |
| 10:45 a.m. - 11:30 a.m. | Keynote: How Cure SMA has Made Progress by Building Community and Collaborations |
| 11:30 a.m.- 12:15 p.m. | COVID Challenges in Nonprofit and Research Communities |
| 12:15 p.m. - 12:45 p.m. | Break |
| 12:45 p.m. - 1:45 p.m. | Challenges in Therapeutic Development |
| 1:45 p.m. - 2:45 p.m. | Meet the Program Directors Part : Breakouts by Division of Neuroscience with Divisions of Translational and Clinical Research participation |
| 2:45 p.m. - 3:00 p.m. | Break |
| 3:00 p.m. - 4:00 p.m. | Clinical Trials: Precision Approaches to Rare and Not So Rare Disorders |
Watch Videocast: Day 2
| Time | Agenda Item |
|---|---|
| 10:30 a.m. - 11:00 a.m. | 2021-2026 NINDS Strategic Plan |
| 11:00 a.m. - 12:00 p.m. | Meet the Program Directors Part 2: Breakouts by Divisions of Translational Research and Clinical Research with Division of Neuroscience participation |
Committee Members
| Member | Organization |
| Adam Hartman | NINDS |
| Amy Adams | NINDS |
| Chris Boshoff | NINDS |
| Cynthia Oviatt | Ataxia-Telangiectasia Children’s Project |
| Geraldine Bliss | CureSHANK |
| Janet Hieshetter | Dystonia Medical Research Foundation |
| Jill Morris | NINDS |
| Lyn Jakeman | NINDS |
| Margo Warren | NINDS |
| Michael Oshinsky | NINDS |
| Monica Weldon | Bridge the Gap – SYNGAP Education and Research Foundation |
| Nina Schor | NINDS |
| Paul Gross | Hydrocephalus Association |
| Ronald Bartek | The Friedreich’s Ataxia Research Alliance |
| Susan Dickinson | The Association for Frontotemporal Degeneration |
| Walter Koroshetz | NINDS |
Related Resources
Speaker List(pdf, 200 KB)
2020 Nonprofit Forum Evaluation Survey