Provides free professional support to people with cancer, family members, loved ones, and the bereaved, all across the country.
Patient Organizations
This listing is not intended to be a comprehensive listing of all not-for-profit health agencies in the United States, nor does inclusion of any particular organization imply endorsement by the National Institutes of Health or the Department of Health and Human Services. Our intent is to provide information useful to individuals nationally, and for this reason we have not included many local groups that offer valuable assistance to patients and their families within a limited geographic area. Many of the organizations listed in this directory have information available to the public on the World Wide Web.
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Grassroots organization dedicated to supporting and improving the lives of America's family caregivers.
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Collaborative initiative created to gather, analyze, and share information about HPE. Maintains an international registry and an ongoing HPE database.
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Dedicated to funding research and educational activities relevant to discovering cause, cure, and evidence based care for individuals with CP and related developmental disabilities.
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National nonprofit organization to optimize the lifelong health and wellness of people with cerebral palsy and their families through high quality research, educatio
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Works to improve the lives of people affected by attention-deficit/hyperactivity disorder (AD/HD) through collaborative leadership, advocacy, research, education, and support and offers the Nationa
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Provides education and support to persons with Charcot-Marie-Tooth disorders, their families, and the health professionals who treat them.
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Nonprofit advocacy organization committed to serving as a collaborative center of education and support for childrne and families living eith neurologic conditions.
Non-profit organization that raises funds for scientific and clinical research to improve both prognosis and quality of life for those affected by pediatric brain tumors.
Works to improve the treatment, quality of life, and long-term outlook for children with brain and spinal cord tumors through research, support, education, and advocacy programs.