Patient Organizations

This listing is not intended to be a comprehensive listing of all not-for-profit health agencies in the United States, nor does inclusion of any particular organization imply endorsement by the National Institutes of Health or the Department of Health and Human Services. Our intent is to provide information useful to individuals nationally, and for this reason we have not included many local groups that offer valuable assistance to patients and their families within a limited geographic area. Many of the organizations listed in this directory have information available to the public on the World Wide Web.

 

BlazeSports mission is to advance the lives of children and adults with physical disabilities through sport, healthy lifestyles, and the prevention of chronic health conditions.
Nonprofit organization committed to disseminating accurate and current information about treatments for and best practices surrounding the management of Chiari malformation, syringomyelia & relate
The Brain Aneurysm Foundation is the nation's only nonprofit organization solely dedicated to providing critical awareness, education, support and research funding to reduce the incidence of brain ane
The Brain Attack Coalition is a group of professional, voluntary and governmental entities dedicated to reducing the occurrence, disabilities and death associated with stroke.

Non-profit organization dedicated to people with brain injury and their families.

Nationwide organization devoted to improving the outcome of traumatic brain injury patients.

Non-profit charitable organization dedicated to funding research and educating the public on Alzheimer's disease, glaucoma, and macular degeneration.

Non-profit organization that funds research, works to raise public awareness, and offers services in support of families affected by Canavan disease.

Works to educate target population about genetic screening available for Canavan disease and other Jewish genetic diseases, and supports research to find a treatment and cure for Canavan disease.

All volunteer non-profit organization that funds research leading to treatments and or a cure for diseases of the brain.

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