Non-profit organization dedicated to the support of AIDS research, HIV prevention, treatment education, and the advocacy of sound AIDS-related public policy.
Patient Organizations
This listing is not intended to be a comprehensive listing of all not-for-profit health agencies in the United States, nor does inclusion of any particular organization imply endorsement by the National Institutes of Health or the Department of Health and Human Services. Our intent is to provide information useful to individuals nationally, and for this reason we have not included many local groups that offer valuable assistance to patients and their families within a limited geographic area. Many of the organizations listed in this directory have information available to the public on the World Wide Web.
Works to advance awareness and treatment of Angelman Syndrome through education and information, research, and support.
Charitable foundation that works to increase the public's awareness of aphasia and the effective long-term treatments available to people with aphasia.
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Volunteer-driven organization that works to improve lives through leadership in the prevention, control, and cure of arthritis and related diseases.
Nonprofit organization whose mission is to eliminate the challenges of creatine deficiency syndromes through education, advocacy, and medical research.
Nonprofit organization that promotes and funds research into finding the cause and cure for frontotemporal degeneration, also called frontotemporal dementia (FTD); provides information, education,
International not-for-profit organization that acts as a focus for individuals with glycogen storage diseases and their families.
National not-for-profit, 501(c)3 organization formed by a group of parents and professionals concerned about the care and treatment of individuals with autism.
Non-profit organization that raises funds to support and coordinate biomedical research projects, scientific conferences, and a clinical center aimed at finding a cure for ataxia telangiectasia, a
Works to protect and advance the human rights and civil rights of all persons with autism, Pervasive Developmental Disorder, and related differences of communication and behavior.