Patient Organizations

This listing is not intended to be a comprehensive listing of all not-for-profit health agencies in the United States, nor does inclusion of any particular organization imply endorsement by the National Institutes of Health or the Department of Health and Human Services. Our intent is to provide information useful to individuals nationally, and for this reason we have not included many local groups that offer valuable assistance to patients and their families within a limited geographic area. Many of the organizations listed in this directory have information available to the public on the World Wide Web.

 

Non-profit health organization providing diabetes research, advocacy services, and information, including information on the complications of diabetes, such as diabetic neuropathy.

All-volunteer research-funding organization that encourages scientific research toward finding the cause of and cure for fibromyalgia syndrome.

The American Headache Society is a nonprofit patient-health professional partnership dedicated to advancing the treatment and management of patients with headache.

National voluntary health agency whose mission is to reduce disability and death from cardiovascular diseases and stroke.

National non-profit health agency dedicated to the prevention, treatment, and cure of hepatitis and all liver diseases through research, education, and advocacy.

Seeks to “Ease the Burden – Find the Cure” through funding scientific research. Provides comprehensive patient/caregiver support and education.

Provides information about sleep apnea to the public, publishes a newsletter, and serves as an advocate for people with the disorder.

Professional, scientific, and credentialing association for audiologists, speech-language pathologists, and speech, language, and hearing scientists.

Offers a wide array of programs, products, and services, from patient education materials to scientific statements with cutting-edge information for healthcare professionals.

Non-profit organization that works to improve the lives of people with syringomyelia, Chiari malformations, and related disorders.
Export to:
A maximum of 400 records can be exported.