Patient Organizations

This listing is not intended to be a comprehensive listing of all not-for-profit health agencies in the United States, nor does inclusion of any particular organization imply endorsement by the National Institutes of Health or the Department of Health and Human Services. Our intent is to provide information useful to individuals nationally, and for this reason we have not included many local groups that offer valuable assistance to patients and their families within a limited geographic area. Many of the organizations listed in this directory have information available to the public on the World Wide Web.

 

Voluntary, non-profit foundation established to support children who are afflicted with AHC and their parents.

National voluntary health organization committed to finding a cure for Alzheimer’s and helping those affected by the disease.

Works to provide optimal care and services to individuals confronting dementia and to their caregivers and families through member organizations dedicated to improving quality of life.

Public charity whose mission is to accelerate the discovery and development of drugs to prevent, treat, and cure Alzheimer's disease, related dementias, and cognitive aging.

A cross-disability national non-profit 501(c)(3) organization committed to promoting health and wellness initiatives for children and adults with disabilities; specifically dedicated to integrating pu

Non-profit information and support resource. Provides information to the medical community and works to decrease isolation and stress for people with Behcet's Disease and their family members.

Nonprofit organization comprised of more than 85 of the United States’ leading professional neurological, psychological, and psychiatric associations and patient organizations, clinicians, research

Funds researchers working toward breakthroughs in brain tumor diagnosis, treatment and care, and is a national organization providing comprehensive resources and serving the complex supportive care

Nationwide community-based voluntary health organization dedicated to eliminating cancer as a major health problem by preventing cancer, saving lives, and diminishing suffering from cancer, through re

Provides self-help coping skills and peer support to people with chronic pain. Sponsors local support groups throughout the U.S.

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