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Patient Organizations
Patient Organizations
This listing is not intended to be a comprehensive listing of all not-for-profit health agencies in the United States, nor does inclusion of any particular organization imply endorsement by the National Institutes of Health or the Department of Health and Human Services. Our intent is to provide information useful to individuals nationally, and for this reason we have not included many local groups that offer valuable assistance to patients and their families within a limited geographic area. Many of the organizations listed in this directory have information available to the public on the World Wide Web.
Centers for Disease Control and Prevention (CDC)
Centers for Medicare and Medicaid Services (CMS)
Cerebral Palsy Foundation
Dedicated to funding research and educational activities relevant to discovering cause, cure, and evidence based care for individuals with CP and related developmental disabilities.
CHADD - Children and Adults with Attention-Deficit/Hyperactivity Disorder
Works to improve the lives of people affected by attention-deficit/hyperactivity disorder (AD/HD) through collaborative leadership, advocacy, research, education, and support and offers the National Resource Center on AD/HD at www.help4adhd.org.
Charcot-Marie-Tooth Association (CMTA)
Provides education and support to persons with Charcot-Marie-Tooth disorders, their families, and the health professionals who treat them.
Child Neurology Foundation
Nonprofit advocacy organization committed to serving as a collaborative center of education and support for childrne and families living eith neurologic conditions.
Childhood Brain Tumor Foundation
Non-profit organization that raises funds for scientific and clinical research to improve both prognosis and quality of life for those affected by pediatric brain tumors. Works to heighten public awareness and provides information and resources for families and patients.
Children's Brain Tumor Foundation
Works to improve the treatment, quality of life, and long-term outlook for children with brain and spinal cord tumors through research, support, education, and advocacy programs.
Children's Craniofacial Association
Non-profit organization dedicated to improving the quality of life for people with facial differences and their families.
Children's Gaucher Research Fund
Grassroots non-profit organization that supports research efforts on Types 2 and 3 Gaucher disease.
