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Patient Organizations
Patient Organizations
This listing is not intended to be a comprehensive listing of all not-for-profit health agencies in the United States, nor does inclusion of any particular organization imply endorsement by the National Institutes of Health or the Department of Health and Human Services. Our intent is to provide information useful to individuals nationally, and for this reason we have not included many local groups that offer valuable assistance to patients and their families within a limited geographic area. Many of the organizations listed in this directory have information available to the public on the World Wide Web.
ThinkFirst National Injury Prevention Foundation
National injury prevention program dedicated to preventing brain, spinal cord, and other traumatic injuries through the education of individuals, community leaders, and creators of public policy. ThinkFirst is a 501(c)(3) organization.
TMJ Association Ltd.
National non-profit organization providing information on Temporomadibular Joint and Muscle Disorders (TMJDs), pain and/or dysfunction of the jaw joint affecting a person's ability to speak, eat, chew, smile, kiss, and even breathe. The TMJ Association Ltd., is dedicated to promoting awareness, education and scientific research.
Tourette Association of America
Association dedicated to serving people with Tourette Syndrome and funding scientific research. TSA maintains chapters in each state and cooperates with contacts in 45 foreign countries. Inquirers receive free material and a local physician referral listing. TSA publishes materials for families, physicians, and researchers and offers a quarterly newsletter.
Tremor Action Network
National non-profit dedicated to increasing awareness of essential tremor by advocating for a cure through research. Offers support for patients, family members, and caregivers through a quarterly newsletter, videos, and guidance from advocates.
Tuberous Sclerosis Alliance
National non-profit voluntary health organization dedicated to finding a cure for tuberous sclerosis while improving the lives of those affected.
United Brachial Plexus Network
Non-profit organization devoted to providing information, support and leadership for families and those concerned with brachial plexus injuries and their prevention worldwide.
United Cerebral Palsy (UCP)
Educates, advocates and provides support services to ensure a life without limits for people with a spectrum of disabilities.
United Leukodystrophy Foundation
Nonprofit voluntary health organization dedicated to providing patients and their families with information; assistance in identifying sources of medical care, social services, and genetic counseling; establishing a communication network among families; increasing public awareness, and acting as an information source for health care providers. Promotes supports research into causes, treatments, and prevention of the leukodystrophies.
United Mitochondrial Disease Foundation
Promotes research for cures and treatments of mitochondrial disorders and provides support for affected families. Represents adults and children alike and continues to serve families with a variety of programs.
United Spinal Association
The United Spinal Association is dedicated to improving the quality of life for hundreds of thousands of Americans living with the results of spinal cord injury and disease (SCI/D) and their families. NSCIA, educates and empowers survivors of SCI/D to achieve and maintain the highest levels of independence, health and personal fulfillment.