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Patient Organizations
Patient Organizations
This listing is not intended to be a comprehensive listing of all not-for-profit health agencies in the United States, nor does inclusion of any particular organization imply endorsement by the National Institutes of Health or the Department of Health and Human Services. Our intent is to provide information useful to individuals nationally, and for this reason we have not included many local groups that offer valuable assistance to patients and their families within a limited geographic area. Many of the organizations listed in this directory have information available to the public on the World Wide Web.
American Pain Foundation
Independent non-profit information, education, and advocacy organization serving people with pain. Works to improve the quality of life for people with pain by raising public awareness, providing practical information, promoting research, and advocating the removal of barriers and increased access to effective pain management.
American Parkinson Disease Association
Seeks to “Ease the Burden – Find the Cure” through funding scientific research. Provides comprehensive patient/caregiver support and education.
American Sleep Apnea Association
Provides information about sleep apnea to the public, publishes a newsletter, and serves as an advocate for people with the disorder.
American Sleep Association
The primary mission of the American Sleep Association is to improve public health by increasing awareness about the importance of sleep and the dangers of sleep disorder.
American Speech-Language-Hearing Association(ASHA)
Professional, scientific, and credentialing association for audiologists, speech-language pathologists, and speech, language, and hearing scientists. Offers public information about a wide range of speech, language, and hearing disabilities in both children and adults.
American Stroke Association: A Division of American Heart Association
Offers a wide array of programs, products, and services, from patient education materials to scientific statements with cutting-edge information for healthcare professionals.
American Syringomyelia & Chiari Alliance Project (ASAP)
Non-profit organization that works to improve the lives of people with syringomyelia, Chiari malformations, and related disorders. Publishes a newsletter and offers other written information, videotapes, an annual conference, and other services.
amfAR, The Foundation for AIDS Research
Non-profit organization dedicated to the support of AIDS research, HIV prevention, treatment education, and the advocacy of sound AIDS-related public policy.
Angelman Syndrome Foundation
Works to advance awareness and treatment of Angelman Syndrome through education and information, research, and support.
Angioma Alliance
Non-profit charitable organization created by people affected by cavernous angiomas. Provides education and support and promotes research.