Patient Organizations

Patient Organizations


This listing is not intended to be a comprehensive listing of all not-for-profit health agencies in the United States, nor does inclusion of any particular organization imply endorsement by the National Institutes of Health or the Department of Health and Human Services. Our intent is to provide information useful to individuals nationally, and for this reason we have not included many local groups that offer valuable assistance to patients and their families within a limited geographic area. Many of the organizations listed in this directory have information available to the public on the World Wide Web.


National Institute on Alcohol Abuse and Alcoholism (NIAAA)

National Institutes of Health, DHHS
5635 Fishers Lane, MSC 9304
Bethesda, MD 20892-9304
Tel: 301-443-3860


National Institute on Deafness and Other Communication Disorders (NIDCD)

National Institutes of Health, DHHS
31 Center Drive, MSC 2320
Bethesda, MD 20892-2320
Tel: 301-496-7243; 800-241-1044; 800-241-1055 (TTY)


National Institute on Deafness and OtherCommunication Disorders Information Clearinghouse

1 Communication Avenue
Bethesda, MD 20892-3456
Tel: 800-241-1044; 800-241-1055 (TTY)


National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR)

Administration for Community Living
330 C St., NW
Washington, DC 20201
Tel: 202-401-4634; 202-245-7316 (TTY)


National Institute on Drug Abuse (NIDA)

National Institutes of Health, DHHS
6001 Executive Blvd., Rm. 5213 MSC 9561
Rockville, MD 20892-9561
Tel: 301-443-1124; 800-729-6686 (Publications)


National Library of Medicine (NLM)

National Institutes of Health, DHHS
8600 Rockville Pike, Bldg. 38, Rm. 2S10
Bethesda, MD 20894
Tel: 301-496-6308; 888-346-3656


National Meningitis Association

P.O. Box 60143
Ft. Myers, FL 33906
Tel: 866-366-3662
Fax: 877-703-6096

Non-profit public charity that works to inform families, medical professionals, and others about the dangers of meningococcal meningitis and the benefits of vaccination.


National MPS Society, Inc.

PO Box 14686
Durham, NC 27709-4686
Tel: 877-MPS-1001; 919-806-0101
Fax: 919-806-2055

Dedicated to finding cures for mucopolysaccharidosis (MPS) and related diseases. Provides hope and support for affected individuals and their families by sponsoring research, advocacy, and awareness programs.


National Multiple Sclerosis Society

733 Third Avenue
3rd Floor
New York, NY 10017-3288
Tel: 800-FIGHT-MS (800-344-4867)
Fax: 212-986-7981

Funds research, helps families stay together, provides accurate and up-to-date information, helps with employment issues, offers free counseling, runs self-help groups, advocates for people with disabilities, and provides referrals to medical professionals.


National NeuroAIDS Tissue Consortium

401 N. Washington Street
Suite 700
Rockville, MD 20850
Tel: 866-668-2272; 301-251-1161 (x186)
Fax: 301-576-4597

Provides tissue for AIDS-related research through a banking network of centers.

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