Patient Organizations

Patient Organizations

This listing is not intended to be a comprehensive listing of all not-for-profit health agencies in the United States, nor does inclusion of any particular organization imply endorsement by the National Institutes of Health or the Department of Health and Human Services. Our intent is to provide information useful to individuals nationally, and for this reason we have not included many local groups that offer valuable assistance to patients and their families within a limited geographic area. Many of the organizations listed in this directory have information available to the public on the World Wide Web.

March of Dimes

1550 Crystal Drive, Suite 1300
Arlington, VA 22202
Tel: 888-MODIMES (663-4637)
Fax: 914-428-8203

Works to improve the health of babies by preventing birth defects and infant mortality through programs of research, community services, education, and advocacy.

Mayday Fund [For Pain Research]

c/o SPG
136 West 21st Street, 6th Floor
New York, NY 10011
Tel: 212-366-6970
Fax: 212-366-6979

The Mayday Pain Project works to increase awareness and to provide objective information concerning the treatment of pain.

Meningitis Foundation of America, Inc.

P.O. Box 1818
El Mirage, AZ 85335
Tel: 480-270-2652

Helps support patients with meningitis and their families. Provides information to educate the public and medical professionals about meningitis about early diagnosis and treatment. Also works for the development of vaccines and other means of treating and/or preventing meningitis.

Miami Project to Cure Paralysis

P.O. Box 016960
Miami, FL 33101-6960
Tel: 305-243-6001; 800-STANDUP (782-6387)
Fax: 305-243-6017

Supports and conducts research and related programs in the area of spinal cord injury.

Michael J. Fox Foundation for Parkinson's Research

Grand Central Station
P.O. Box 4777
New York, NY 10163
Tel: 212-509-0995

Dedicated to advancing a cure for Parkinson’s disease by identifying promising research and raising funds for research support.

Migraine Research Foundation

300 East 75th Street
Suite 3K
New York, NY 10021
Tel: 212-249-5402
Fax: 212-249-5405

Assists migraine sufferers by providing information and support and by raising money to fund innovative research into its causes and better treatments.


P.O. Box 51474
Boston, MA 02205
Tel: 888-648-6228

Works to improve quality of life for adults and children affected by mitochondrial disease and to raise awareness about mitochondrial disorders and their relationship to other diseases.

MLD Foundation

21345 Miles Drive
West Linn, OR 97068
Tel: 800-617-8387; 503-656-4808

Moebius Syndrome Foundation

P.O. Box 147
Pilot Grove, MO 65276
Tel: 844-663-2487

Non-profit organization that provides individuals and families with a support network; promotes public and professional education about the disorder, and promotes and funds research.

Mucolipidosis IV (ML4) Foundation

1440 Spring Street, N.W.
Atlanta, GA 30309
Tel: 877-ML4-5459 (654-5459)

Funds, promotes, and supports medical research dedicated to developing treatments and a cure for ML4, which causes mental retardation, motor delays, retinal degeneration, and limited lifespan.