Patient Organizations


This listing is not intended to be a comprehensive listing of all not-for-profit health agencies in the United States, nor does inclusion of any particular organization imply endorsement by the National Institutes of Health or the Department of Health and Human Services. Our intent is to provide information useful to individuals nationally, and for this reason we have not included many local groups that offer valuable assistance to patients and their families within a limited geographic area. Many of the organizations listed in this directory have information available to the public on the World Wide Web.


American Behcet's Disease Association

P.O. 80576
Rochester, MI 48308
Tel: 800-7-BEHCETS; 723-4238
Fax: 480-247-5377

Non-profit information and support resource. Provides information to the medical community and works to decrease isolation and stress for people with Behcet's Disease and their family members.


American Brain Coalition

6257 Quantico Lane N.
Maple Grove, MN 55331
Tel: 763-557-2913
Fax: 860-586-7550

Nonprofit organization comprised of more than 85 of the United States’ leading professional neurological, psychological, and psychiatric associations and patient organizations, clinicians, researchers, industry, and government agencies. Seeks to advance the understanding of the function of the brain, and to reduce the burden of brain disorders through public advocacy.


American Brain Tumor Association (ABTA)

8550 W. Bryn Mawr Ave.
Suite 550
Chicago, IL 60631
Tel: 773-577-8750; 800-886-2282
Fax: 847-827-9918

Funds researchers working toward breakthroughs in brain tumor diagnosis, treatment and care, and is a national organization providing comprehensive resources and serving the complex supportive care needs of brain tumor patients and caregivers from diagnosis through treatment and beyond.


American Cancer Society

National Home Office
250 Williams Street, NW
Atlanta, GA 30303-1002
Tel: 800-ACS-2345 (227-2345)

Nationwide community-based voluntary health organization dedicated to eliminating cancer as a major health problem by preventing cancer, saving lives, and diminishing suffering from cancer, through research, education, advocacy, and service.


American Chronic Pain Association (ACPA)

P.O. Box 850
Rocklin, CA 95677-0850
Tel: 916-632-0922; 800-533-3231
Fax: 916-652-8190

Provides self-help coping skills and peer support to people with chronic pain. Sponsors local support groups throughout the U.S. and provides assistance in starting and maintaining support groups.


American Diabetes Association

1701 North Beauregard Street
Alexandria, VA 22311
Tel: 800-DIABETES (342-2383); 703-549-1500

Non-profit health organization providing diabetes research, advocacy services, and information, including information on the complications of diabetes, such as diabetic neuropathy.


American Fibromyalgia Syndrome Association, Inc. (AFSA)

P.O. Box 32698
Tucson, AZ 85715
Tel: 520-733-1570
Fax: 520-290-5550

All-volunteer research-funding organization that encourages scientific research toward finding the cause of and cure for fibromyalgia syndrome.


American Headache Society Committee for Headache Education (ACHE)

19 Mantua Road
Mt. Royal, NJ 08061
Tel: 856-423-0043
Fax: 856-423-0082

The American Headache Society Committee on Headache Education (ACHE) is a nonprofit patient-health professional partnership dedicated to advancing the treatment and management of patients with headache.


American Heart Association

7272 Greenville Avenue
Dallas, TX 75231-4596
Tel: 800-AHA-USA1 (242-8721); 214-373-6300

National voluntary health agency whose mission is to reduce disability and death from cardiovascular diseases and stroke.


American Liver Foundation

39 Broadway, Suite 2700
New York, NY 10006
Tel: 800-GO LIVER (465-4837); 212-668-1000
Fax: 212-483-8179

National non-profit health agency dedicated to the prevention, treatment, and cure of hepatitis and all liver diseases through research, education, and advocacy.

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