Patient Organizations

Patient Organizations

This listing is not intended to be a comprehensive listing of all not-for-profit health agencies in the United States, nor does inclusion of any particular organization imply endorsement by the National Institutes of Health or the Department of Health and Human Services. Our intent is to provide information useful to individuals nationally, and for this reason we have not included many local groups that offer valuable assistance to patients and their families within a limited geographic area. Many of the organizations listed in this directory have information available to the public on the World Wide Web.

Daniel Heumann Fund for Spinal Cord Research

6516 Truman Lane
Falls Church, VA 22043-1821
Tel: 703-442-8797
Fax: 703-448-6914

Funds breakthrough research to find a cure for paralysis caused by spinal cord injury.

Davis Phinney Foundation

357 S. McCaslin Boulevard, Suite 105
Louisville, CO 80027
Tel: 866-358-0285; 303-733-3340
Fax: 303-733-3350

Dedicated to helping people with Parkinson’s disease to live well today. Provides information, inspiration, tools, resources, and opportunities to people living with PD and care partners to better manage their disease and promote increased engagement in health.

Defeat MSA

29924 Jefferson Avenue
Saint Clair Shores, MI 48082
Tel: 855-542-5672

Department of Agriculture (USDA)

National Agricultural Library
10301 Baltimore Avenue
Beltsville, MD 20705-2351
Tel: 301-504-5755; 301-504-6856 (TTY)
Fax: 301-504-6927

Department of Health and Human Services

200 Independence Avenue, S.W.
Washington, DC 20201
Tel: 202-619-0257; 877-696-6775

Department of Veterans Affairs (VA)

Public Affairs & Intergovernment Affairs Consumer Affairs Service (075B)
810 Vermont Avenue, N.W.
Washington, DC 20420
Tel: 202-273-5770; 800-827-1000

Diann Shaddox Foundation for Essential Tremor

241 Boxelder Drive
Aiken, SC 29803
Tel: 803-761-2860
Fax: 803-641-0640

Disability Resources

Four Glatter Lane
Centereach, NY 11720-1032
Tel: 631-585-0290
Fax: same

Non-profit organization that works to promote and improve awareness, availability, and accessibility of information to help people with disabilities live, learn, work, and play independently. Disseminates information through a newsletter, a guide to toll-free telephone resources, a website, and other tools.

Disabled American Veterans

3725 Alexandria Pike
Cold Spring, KY 41076
Tel: 877-426-2838

Works to better the lives of disabled veterans and their families by providing assistance in obtaining benefits and services earned through military service.

Disabled Sports USA

451 Hungerford Drive
Suite 100
Rockville, MD 20850
Tel: 301-217-0960
Fax: 301-217-0968

Member of the U.S. Olympic Committee that provides sports rehabilitation programs for individuals with physical disabilities and provides training and competition for athletes with disabilities who compete in Paralympic Games.