Government Resources


This listing is not intended to be a comprehensive listing of all not-for-profit health agencies in the United States, nor does inclusion of any particular organization imply endorsement by the National Institutes of Health or the Department of Health and Human Services. Our intent is to provide information useful to individuals nationally, and for this reason we have not included many local groups that offer valuable assistance to patients and their families within a limited geographic area. Many of the organizations listed in this directory have information available to the public on the World Wide Web.


National Rehabilitation Information Center (NARIC)

8400 Corporate Drive
Suite 500
Landover, MD 20785
Tel: 301-459-5900; 800-346-2742; 301-459-5984 (TTY)
Fax: 301-562-2401


National Vaccine Injury Compensation Program

Health Resources and Services Administration, DHHS
Parklawn Bldg., 5600 Fishers Lane
Rockville, MD 20857
Tel: 301-443-6593; 800-338-2382


NIAID Office of Communications and Government Relations

National Institutes of Health, DHHS
5601 Fishers Lane, MSC 9806
Bethesda, MD 20892
Tel: 301-496-5717


Occupational Safety & Health Administration

U.S. Department of Labor
200 Constitution Avenue, NW
Washington, DC 20210
Tel: 800-321-OSHA (6742)


Office of Clinical Center Communications

National Institutes of Health, DHHS
6100 Executive Blvd., Room 3C01
Bethesda, MD 20892-7511
Tel: 301-496-2563


Office of Disability Employment Policy

U.S. Department of Labor
Perkins Bldg., 200 Constitution Avenue, NW
Washington, DC 20210
Tel: 866-ODEP-DOL (633-7365); 877-889-5627 (TTY)


Office of Rare Disease Research

National Institutes of Health, DHHS
6100 Executive Blvd., Rm. 3A07, MSC 7518
Bethesda, MD 20892-7158
Tel: 301-402-4336


Patient Recruitment and Public Liaison Office

National Institutes of Health, DHHS
Bldg. 61, #10 Cloister Court
Bethesda, MD 20892-4754
Tel: 800-411-1222; 866-411-1010 (TTY)


Social Security Administration

6401 Security Blvd.
Windsor Park Building
Baltimore, MD 21235
Tel: 410-966-3000; 800-772-1213; 800-325-0778 (TTY)
Fax: 410-965-0696


Substance Abuse and Mental Health Services Administration

1 Choke Cherry Road
Rockville, MD 20857
Tel: 800-662-HELP (1-800-662-4357)

A nonprofit group whose mission is to advance research on chordoma, a type of tumor that grows in brain and spinal cord.

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