Government Resources


This listing is not intended to be a comprehensive listing of all not-for-profit health agencies in the United States, nor does inclusion of any particular organization imply endorsement by the National Institutes of Health or the Department of Health and Human Services. Our intent is to provide information useful to individuals nationally, and for this reason we have not included many local groups that offer valuable assistance to patients and their families within a limited geographic area. Many of the organizations listed in this directory have information available to the public on the World Wide Web.


National Center for Health Statistics (NCHS)

Centers for Disease Control and Prevention, DHHS
Division of Data Services, 3311 Toledo Road
Hyattsville, MD 20782
Tel: 301-458-4636; 866-441-NCHS (6247)


National Council on Disability

1331 F Street, N.W.
Suite 850
Washington, DC 20004
Tel: 202-272-2004; 202-272-2074 (TTY)
Fax: 202-272-2022


National Dissemination Center for Children with Disabilities

U.S. Dept. of Education, Office of Special Education Programs
1825 Connecticut Avenue NW, Suite 700
Washington, DC 20009
Tel: 800-695-0285; 202-884-8200
Fax: 202-884-8441


National Eye Institute (NEI)

National Institutes of Health, DHHS
31 Center Drive, Rm. 6A32 MSC 2510
Bethesda, MD 20892-2510
Tel: 301-496-5248


National Health Information Center (NHIC)

U.S. Department of Health and Human Services
P.O. Box 1133
Washington, DC 20013-1133
Tel: 301-565-4167; 800-336-4797
Fax: 301-984-4256


National Heart, Lung, and Blood Institute (NHLBI)

National Institutes of Health, DHHS
31 Center Drive, Rm. 4A21 MSC 2480
Bethesda, MD 20892-2480
Tel: 301-592-8573; 240-629-3255 (TTY); Recorded Info: 800-575-WELL (9355)


National Heart, Lung, and Blood InstituteHealth Information Center

P.O. Box 30105
Bethesda, MD 20824-0105
Tel: 301-592-8573; 240-629-3255 (TTY); Recorded Info: 800-575-WELL (9355)


National Human Genome Research Institute (NHGRI)

National Institutes of Health, DHHS
31 Center Drive, Rm. 4B09 MSC 2152
Bethesda, MD 20892-2152
Tel: 301-402-0911


National Institute for Occupational Safety and Health

Centers for Disease Control and Prevention, DHHS
4676 Columbia Parkway, Mail Stop C-13
Cincinnati, OH 45226-1998
Tel: 800-232-4636
Fax: 513-533-8573


National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS)

National Institutes of Health, DHHS
31 Center Dr., Rm. 4C02 MSC 2350
Bethesda, MD 20892-2350
Tel: 301-496-8190; 877-22-NIAMS (226-4267)

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