217 Thompson Street
Foundation that raises funds in support of research for ataxia telangiectasia.
460 Totten Pond Rd. Suite 420
National nonprofit organization dedicated to accelerating efforts toward a cure for MS. Researchers have access to online resources and the ACP Repository of highly characterized biosamples.
P.O. Box 700248
National non-profit that funds research and promotes public awareness of Pompe disease.
600 Peachtree Parkway
Tel: 770-205-8211; 877-200-8211
Provides information and support to patients diagnosed with or treated for acoustic neuroma or other benign tumors affecting the cranial nerves.
401 North Washington Street
Tel: 800-949-4232; 301-217-0124
Provides information, guidance and training on the Americans with Disabilities Act (ADA), tailored to meet the needs of business, government and individuals at local, regional and national levels.
P.O. Box 8547
Tel: 703-437-2078; 800-358-9295
Centers for Disesase Control and Prevention, DHHS
1600 Clifton Rd. MS E-29
Tel: 404-498-0110; 800-232-4636
P.O. Box 3202
Information gathering and sharing resource for professional and health care personnel and Aicardi syndrome families. Sponsors a biennial conference.
1510 Polo Fields Court
Newsletter published 2-3 times a year as a sharing resource and source of information for Aicardi Syndrome families.
P.O. Box 4780
Tel: 800-HIV-0440 (448-0440); 888-480-3739 (TTY)